Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"celiac Attack"


Kaukaukka

Recommended Posts

Kaukaukka Newbie

I had a question regarding the celiac attack. I was reading here about some of the attcks you folks have and I have to ask.  I  was told I had celiac at 30 (8 years)  I had a blood test only, but it was off the charts.  My question is, when I have a celiac attack (and its never a great deal of wheat eaten on accident) I do not have many if any physical symptoms.  Rather my mood and emotions become very bad.  I am not even the same person.  I cant think, I get SUPER depressed. ect.  Am I the only one who has this?  Because, I had gluten just over a week ago (a mistake in a resturant) and feeling an emotional change. My hair even seems different.    I need to know if this is common, or possible or should I be looking into something else.   When I am on a strick diet, I am just fine. 

THANKS bunches

 

REBECCA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DutchGirl Apprentice

You are not alone! Gluten definitely affects me physically but it has a huge impact on my mood. I become depressed, anxious, brain fog and moody! It's awful!

Lisa Mentor

I had a question regarding the celiac attack. I was reading here about some of the attcks you folks have and I have to ask.  I  was told I had celiac at 30 (8 years)  I had a blood test only, but it was off the charts.  My question is, when I have a celiac attack (and its never a great deal of wheat eaten on accident) I do not have many if any physical symptoms.  Rather my mood and emotions become very bad.  I am not even the same person.  I cant think, I get SUPER depressed. ect.  Am I the only one who has this?  Because, I had gluten just over a week ago (a mistake in a resturant) and feeling an emotional change. My hair even seems different.    I need to know if this is common, or possible or should I be looking into something else.   When I am on a strick diet, I am just fine. 

THANKS bunches

 

REBECCA

 

Hi Rebecca.  The term "celiac attack or gluten attack" is a term that I have heard here, but not sure how it's defined.  Some people have strong, painful symtoms after gluten ingestion, within twenty minutes or so.  I suppose that's what they mean.  Perhaps this is a severe allergy, or severe gluten intollerance, or both.

 

I personally, get very aggitated and tense, along with digestive issues about 26 hours after a gluten exposure.  The aggitation comes first.

 

Gluten Ataxia effects the brain.  And it can be quite debilitating, for some unrecognized.

 

Everyone is different.  And I would venture to say, that the longer you are gluten free, the more varied your symptoms can be.  I am certain that I have been exposed to cross contamination, or even a minor bit of gluten and have had no reaction, after eight years of being gluten free.  Meaning, that my body is now strong enough to deal with the 20 ppm, that is the proposed level of gluten that  most people with Celiac can be exposed to without damage..

 

Truly, gluten sensitivity is a weird bird, for sure.  You just have to listen to your body.

Kaukaukka Newbie

I really appreciate the feed back. It's super great to know I am not alone in this boat.  Having Celiac in the first place is a nightmare, but when I am contaiminated, I get so bad All I want to do it hide and never leave the house,.  Its tough. My emotions are so bad.  The fog is a good way to describe it. I feel dumb, and am easily confused and cant seem to handle things as well as I can when all is well.  Depression, and just plain irritaed at everything and everyon. 

 

THANK YOU!

 

REBECCA

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.