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22Yr Old Male, 130Lbs , Possible Celiac?


rm7390

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rm7390 Newbie

I have been reading a lot lately on celiac and it seems that I could be a candidate for celiac disease. My gluten-free seems to also be convinced that I must have this.

 

For one, I am underweight and it is seemingly impossible to gain weight. I seemingly have many of the most common symptoms but the one that stuck out most to be is acid reflux. From what I've read this is only common in males. It is very very easy for me to get terrible acid reflux at night and it will keep me awake until I take pepto bismol or a few antacids. I will get acid reflux even when I don't eat before going to bed. 

 

The second symptom that stuck out most to be are my bowel movements. From what I understand if I have floating stools then there is a chance that I could have some kind of malabsorption. Depending on what I eat my bowel movements are sometimes quite painful. For example foods high in fat such as Mcdonalds will cause stomach pain around the abdomen and bad bowel movements. 

 

My next symptom I don't know what it could do with but I was hoping someone could help me. I have a somewhat physical job and sometimes when I am working, notably after drinking something with caffeine or eating something i get a dull pain on my lower left abdomen where my side meets my hipbone, its always on the left and always in the same spot and it isn't a pulled muscle. 

 

Anyway I was looking to see what others thought , thanks for any advice.


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Deaminated Marcus Apprentice

This is a sample Celiac panel.   You have to be eating bread and gluten before doing this blood test.

 

Total IgA
Transglutaminase IgA tTG-IgA
Deaminated Gliadin IgA DGP-IgA
Deaminated Gliadin IgG DGP-IgG

 

 

I resolved my night time reflux when I stopped using pepper on my food.

 

Some of the symptoms you describe could be something serious so do go see a medical doctor.

Tell him-her everything you wrote in your post.

nvsmom Community Regular

It could very well be celiac disease or NCGI (non-celiac gluten intolerance). Marcus listed most of the blood tests that test for celiac disease, you could also request the tTG IgG, EMA IgA, and the AGA IgA or IgG (which are older tests). You must be consuming gluten I the weeks prior to testing.

If your celiac test come back negative, you could have NCGI. Unfortunately there is no test for it other than to eat gluten-free and observe if your symptoms change over the following weeks or months.

Good luck. I hope you feel better soon.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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