Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Being Asymptomatic


DS29790bb

Recommended Posts

DS29790bb Rookie

I am a 19 year old celiac and have had it for five years. Prior to being diagnosed, I was asymptomatic. While a lot of people may consider me lucky for never having to deal with the crappy feeling of being "glutened," it does have its downsides. For example, I am never sure whether something I ate had gluten and sometimes, I feel I exhibit some symptoms of being "glutened" but am never sure.

 

Well, today I have been feeling terrible. I have seriously gone to the bathroom around ten times today not feeling well and am itchy and sweating a bit more and I feel hot. Of course, I am wondering if maybe I did somehow eat gluten and that is the cause or if it's just regular food poisoning or just a bad bout of something. And that's my issue......I never truly got a feel for how it feels to be contaminated so when I have stomach pains or something along those lines, I never am sure whether it could be gluten or something else.

 

So I guess I am asking......can someone give a summary of how they feel when they eat gluten? How do you differentiate this from something else?

 

PS: I know the symptoms are all over the web and I have looked many times at them and it just gets so confusing. I just thought personal help would be better for me to understand the actual symptoms of the disease, as I never truly "experienced" them knowingly ever.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I am not very symptomatic...and that said my symptoms have changed multiple times over the past two years.

The only way I figured it out was that "it" happens more than once after eating out. And that's the ONLY time I feel "it". Then, I'm pretty sure it's gluten since that's the only thing I avoid.

I've gone from a headache in 2 hours to a ball in the belly, to stomach clenching at 24 hours (and continuing for 2 weeks) to bloated belly instantly.

It's irritating.

pretty in paleo Apprentice

I am a 19 year old celiac and have had it for five years. Prior to being diagnosed, I was asymptomatic. While a lot of people may consider me lucky for never having to deal with the crappy feeling of being "glutened," it does have its downsides. For example, I am never sure whether something I ate had gluten and sometimes, I feel I exhibit some symptoms of being "glutened" but am never sure.

 

Well, today I have been feeling terrible. I have seriously gone to the bathroom around ten times today not feeling well and am itchy and sweating a bit more and I feel hot. Of course, I am wondering if maybe I did somehow eat gluten and that is the cause or if it's just regular food poisoning or just a bad bout of something. And that's my issue......I never truly got a feel for how it feels to be contaminated so when I have stomach pains or something along those lines, I never am sure whether it could be gluten or something else.

 

So I guess I am asking......can someone give a summary of how they feel when they eat gluten? How do you differentiate this from something else?

 

PS: I know the symptoms are all over the web and I have looked many times at them and it just gets so confusing. I just thought personal help would be better for me to understand the actual symptoms of the disease, as I never truly "experienced" them knowingly ever.

I am also an asymptomatic Celiac. But while I was eating gluten before my dx I felt horrible all the time. I was afraid to go to the doctor because I thought I might have intestinal cancer. After a few months gluten free I realized I hardly had a reaction anymore. But I know I have celiac, I had every classic symptom plus complications that could not have been anything else, so I avoid it at all costs. Its hard to tell when I've eaten gluten, sometimes my feet and hands ache but even that might only last a couple minutes. Several times I have had random symptoms like itchy skin. By contrast, my other allergies involve hours of intense stomach cramps, nausea, or vomiting.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.