Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Usa - Keep Patients Safe Disclose Drug Ingredients- The Gluten In Medicine Disclosure Act, H.r. 2003

GFinDC

Recommended Posts

GFinDC Veteran
GFinDC
Posted

The American Celiac Disease Alliance is sponsoring a letter writing campaign to support HR 2003 for labeling gluten in medicines in the USA.  Clicking the link below will take you to an online form you can use to submit an email message supporting the bill.  Please consider doing this is you are a citizen of the USA.

 

Thanks! :)

 

Keep Patients Safe Disclose Drug Ingredients- The Gluten in Medicine Disclosure Act, H.R. 2003

 

 

Open Original Shared Link

 

Keep Patients Safe Disclose Drug Ingredients- The Gluten in Medicine Disclosure Act, H.R. 2003

 

I am writing to ask you to co-sponsor The Gluten in Medicine Disclosure, HR 2003. The inactive ingredients in some medicines are sourced from wheat, which can cause harm to the 3 million
people with celiac disease and the untold millions with non-celiac gluten sensitivity.

Current law does not require the source of inactive ingredients of medication to be identified. Without labeling, patients, pharmacists and prescribers don't know if suspect ingredients contain gluten
unless they investigate. Manufacturers may identify the inactive ingredient as "starch," but not say if it is derived from corn, tapioca, or wheat. Websites rarely list the information needed, and phone calls during business hours can result in a days-long wait for an answer. Pharmacists and prescribing healthcare providers of individuals on a medically required gluten-free diet must have immediate access to the source of inactive ingredients. Ready access to this information will ensure patients receive timely
care and prevent unnecessary harm.

The Gluten in Medicine Disclosure Act, H.R. 2003, will solve this problem. Identifying the source of inactive ingredients in drug products will give the consumer, pharmacist and prescriber the information needed to make an informed choice. Industry can support it as it does not impose a financial burden on the manufacturer. All of the national celiac organizations endorse this bill: American Celiac Disease Alliance, Celiac Disease Foundation, Celiac Sprue Association, Gluten Intolerance Group and the National Foundation for Celiac Awareness.  

Please co-sponsor this important legislation and urge your colleagues to pass it without delay.

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,382
    • Most Online (within 30 mins)
      7,748
    victimm
    Newest Member
    victimm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lauramac
      COVID19 and getting glutened

      By lauramac · Posted

      I was diagnosed with Celiac Disease abput 10 years ago. When I was initially diagnosed my only "symptom" was persistently low iron (that occasionally dipped into anemia). After diagnosis,  over time, I started to develop symptoms when exposed to gluten--they have been overall relatively minor, but have increased over time (and yes, I realize my guts are likely being wrecked regardless of the symptoms) on the rare occasions I've been exposed to gluten. I had COVID19 last week (now testing negative) and was glutened last night (never trust anything labeled gluten-free in a mixed environment). I had my traditional symptoms (sharp gas pains, burping, nausea, stomach ache) but they were accompanied by new, more intense symptoms (muscle cramps all over my body--feet, calves, biceps, neck, shoulders, jaw, abdomen, I'm still sore today and cold sweats). I spent about 6 hours writhing before I felt well enough to get up.  I have been told by my allergist that COVID19 can cause your immune system to hyper react. I'm wondering if that's what happened here.   Has anyone else had experience getting glutened post COVID19? Relatively shortly after recovering from COVID19? Was it a more extreme reaction or same? I can't seem to find any articles on this, so I thought I'd ask the community.  Thank you!
    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
×
×
  • Create New...