My Niece Newly Diagnosed

[GlutenStinks15]

Hello All,

 

I was diagnosed with Celiac disease 4 weeks ago. I haven't posted in this group because I do not have children.

 

I am writing today b/c my 12 year old niece was just diagnosed. When I heard her symptoms, I urged her parents to have her tested, and lo and behold she's positive for Celiac.

 

Getting this diagnosis was different for me - I'm a 40 year old woman and am not exactly into the kids stuff that she's into, and I don't have to worry about school lunches, etc.

 

Any advice will be helpful. I already ordered a copy of Cecelia's Marketplace Gluten Free Shopping guide for them.

Thanks in advance!

[mommy2krj]

I am new to this also. My 6 year old son is in the process of being diagnosed. He goes on June 19th for his biopsy. Most likely getting the entire family tested (regardless of symptoms or lack thereof) and after his biopsy our home will be completely gluten free. I just can't imagine making my 6 year old eat different foods from the rest of the family or trying to cook two separate meals without cross contamination.

I would direct them to this website. It's been pretty helpful to me so far with just the browsing I've been doing. I knew a little bit about Celiac's before all this...though like most people...I assumed it was simply an allergy...I had no idea it was an autoimmune disease.

 

The recipe forum here seems to have a lot of good information. I haven't really browsed it indepth yet as I'm trying very hard to not completely overwhelm myself with too much information! (Not that that is working, really.)

 

I have an 18 year old and a 15 year old at home that I know are going to struggle with the change as they are both really picky eaters. My 6 year old will probably have the easiest time as he is usually pretty open to foods of all sorts....except meat. Though it will be hard as his 3 favorite foods are noodles, tortillas and pancakes. I hoping to find some good replacements for those. We were already headed down the whole foods diet path so we were trying to use as little processed stuff as possible and this will just reinforce that a little more.

 

Good luck to you and your niece with getting used to the new diet. Hopefully it won't be too much of a struggle for either of you!

[1desperateladysaved]

Hello All,

 

I was diagnosed with Celiac disease 4 weeks ago. I haven't posted in this group because I do not have children.

 

I am writing today b/c my 12 year old niece was just diagnosed. When I heard her symptoms, I urged her parents to have her tested, and lo and behold she's positive for Celiac.

 

Getting this diagnosis was different for me - I'm a 40 year old woman and am not exactly into the kids stuff that she's into, and I don't have to worry about school lunches, etc.

 

Any advice will be helpful. I already ordered a copy of Cecelia's Marketplace Gluten Free Shopping guide for them.

Thanks in advance!

I am so happy that you brought this to their attention and they listened.  It may be tough for a teen to adjust, but it is just so much better health wise. If you have to live with celiac, It is better to know then not to know .  I feel this is true having had 30+ years undiagnosed.  Your niece has a good chance to recover when gluten free.

 

  .

[GlutenStinks15]

Thank you both.

 

Yes, I agree, much better to have a diagnosis. Thankfully for me, no permanent villi damage - just have to wait to heal.

 

This site has been a godsend - a place to vent and get answers and support from others like me. I know my niece's mom will get lots of help here as well.