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Diagnosed With Ibs But Think Its More Specific


awaywiththefairies

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awaywiththefairies Newbie

Hi

I'm a 27 year old woman currently suffering with constipation which in itself is not unusual for me as I was diagnosed with IBS at 13 after being admitted several times into hospital with chronic constipation. Since this I have been taught to be careful with what I eat, specifically white bread. For the most part, I have not had too many problems with my digestive tract aslong as I followed this dietary warning. However recently my IBS has flared up again, without the influence of bread or stress. The only ingredient in my diet that seems to link in with my flare ups is wheat. Cakes, cereal, pasta specifically leave me feeling irritable, bunged up and tired. I've decided to cut them out of my diet for a few weeks to see what a difference it makes but would like to learn more about celiac disease as I don't trust the doctors will help me much with testing for this. I've got an appointment booked to try but I'm sure they aren't if favour of self diagnosis and will fob me off as a hypercondriact. It may be a wheat allergy or something else entirely but I'm not satisfied its just IBS anymore as it appears to be ingredient specific (as I can tell to date anyway, this is a fairly new revelation). I'm also getting severe itchiness and sneezing lots when I'm constipated, can anyone tell me if this might be linked or just a coincedence? Feeling quite lost and daunted by the prospect of becoming gluten free if this is in fact celiac disease, wheat allergy. But cannot go on feeling the way I do so need some answers so I can help myself and my long suffering digestive system! Appreciate any feedback thank you x


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KristinIrwin Apprentice

My very first celiac symptom was chronic constipation. For months that was my only symptom- no pain, just never being able to go! I know it's the worst feeling and I'm sorry you've been dealing with it for so long :(

I hope if you talk with your doctor he will be willing to do a blood test. I know the IBS diagnosis can be an annoying one to get. But DON'T cut out gluten products until you get testing because you need to be eating gluten for the tests to be accurate.

I can't give any insight to the itching and sneezing, but maybe someone else on the forum can.

Good luck and I hope you start feeling better!

notme Experienced

doc:  so, what's the problem?

me:  same one as usual...  

(looks at chart, looks up at me) 

doc:  well, it's because you have IBS - see?

(shoves chart in my face where it is written in big letters "IBS")

me:  yeah.  you guys keep saying that.  what exactly *is* IBS?

doc:  it means  'Irritable Bowel Syndrome'

me:  so, how do i get rid of it?

doc (shrugs):  you also have 'colitis'.  here's a pill for your (loss of appetite, vertigo, allergies, joint pain, migraines, night blindness, neck pain, bloating, nausea.....) and a cream for your rash.  

 

i have said it before:  they should call it:  I BS U or at least say "i don't know what's wrong with you" i absolutely hate that catch-all 'diagnosis' - good luck to you - i am 3 yrs into the gluten-free diet and lolz thanking God my family doctor finally tripped and fell onto the celiac guess :)  his last diagnosis as he was threatening to put me in the hospital for malnutrition.  he referred me to my GI and everything has gone smoothly from there.  since then, i have only been back to his office to get my blood pressure meds refilled - because i used to catch every single cold/virus that came around and this year i went the entire winter without so much as a sniffle.  

 

IBS, indeed.  well, they got the bs part right lolz

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      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
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