Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor Hadn't Even Heard Of Leaky Gut!


Dancer

Recommended Posts

Dancer Rookie

Why do I feel like my reality just gets invalidated over and over again. I wish these doctors would expand their thinking/knowledge base into the 21st century. It's so hard to work with. So I play the docile patient and go to the rheumatologist for no good reason in case I need some support from the system in case I get really sick. I know that they can't do anything for me except to stress my stressed system with more drugs.

I feel like I just screamed into a vacuum and no-one can hear me. Am I just imagining all of this or is it really happening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

That's frustrating.  I am often glad that I have my own brain.   I always like to get to the root of the problem, but discovered years back that most doctors don't.  I hope you can really work away at the roots of your problems, but mostly that you GET BETTER.

 

Diana

Dancer Rookie

That's frustrating.  I am often glad that I have my own brain.   I always like to get to the root of the problem, but discovered years back that most doctors don't.  I hope you can really work away at the roots of your problems, but mostly that you GET BETTER.

 

Diana

Thank you Diana. That's what I'm trying to do.

Ksee Rookie

Your doctor hasn't heard of leaky gut? That's bologna! It may be he/she doesn't believe it has been proven within certain guidelines but you can't be in medicine today and not have heard of it. To a certain extent the gut is designed to leak, it's one way nutrients get from inside the gut to the rest of the body. Inflammation of the gut allows larger particles and unhealthy other stuff to cross between cells in the same way as fluids, bacteria and toxins. Malabsorption is a wide group of diseases that must be understood before getting any medical degree.

What you have is a passive aggressive doctor telling you to pay no attention to the man behind the curtain pulling the levers and strings. Listen to the Great and Powerful, the All Knowing RheumOztologist blowing smoke up whatever you might have handy.

Sorry to be blunt but I call BS on that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,656
    • Most Online (within 30 mins)
      7,748

    Sandy Bromberg
    Newest Member
    Sandy Bromberg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.