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Allergies Negative...on To Gi

wmramsel

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wmramsel Explorer
wmramsel
Posted
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  On 6/5/2013 at 4:26 PM, pricklypear1971 said:

I would ask about nutrient testing and AI disease monitoring - diabetes, thyroid, etc. that's important.

 

Oh yes, I got that advice from someone else on the forum as well...don't remember who.  The GI has Celiac himself, so I'm hoping....

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pricklypear1971 Community Regular
pricklypear1971
Posted
  On 6/5/2013 at 4:29 PM, wmramsel said:

Oh yes, I got that advice from someone else on the forum as well...don't remember who. The GI has Celiac himself, so I'm hoping....

It sounds like you're doing the right things. I hope your appointments go well.

wmramsel Explorer
wmramsel
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Thank you, it is nice to hear that from someone who has "been there."  With something so "iffy" I am constantly second guessing myself.  Then my husband has moments when he second guesses- we were sitting in the allergist's office and he says "Do you think it is at least possible her reaction (when we had to go to the ER) was coincidental to giving her bread?".....I wanted to punch him.  Irrational, I know.  Nonetheless.....

pricklypear1971 Community Regular
pricklypear1971
Posted
  On 6/5/2013 at 4:40 PM, wmramsel said:

Thank you, it is nice to hear that from someone who has "been there." With something so "iffy" I am constantly second guessing myself. Then my husband has moments when he second guesses- we were sitting in the allergist's office and he says "Do you think it is at least possible her reaction (when we had to go to the ER) was coincidental to giving her bread?".....I wanted to punch him. Irrational, I know. Nonetheless.....

I think that's normal. It will be easier as she gets older.

And btw, your house has gluten in it...and she seems highly sensitive...have you considered a gluten-free household? Cc may explain her lingering symptoms of eczema. A low iodine diet may help with the dh type sores.

wmramsel Explorer
wmramsel
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I have.  We have talked about it.  The only thing holding us back is possible testing for my 13mo old.  If M's genetics test comes back that she is genetically predisposed, I want to have E (my 13mo old son) genetically tested, and then possibly have the Celiac panels run on him as well.  Also, possibly having hubby and I tested.....  Well you see where this is going.  From what I am understanding, if E is genetically predisposed to Celiac, but does not (at least yet) have the disease, the best thing for him to do is eat gluten.  By all means, correct me if I'm wrong.  But that is the only thing really holding me back from going gluten-free as a household.

pricklypear1971 Community Regular
pricklypear1971
Posted
  On 6/5/2013 at 4:52 PM, wmramsel said:

I have. We have talked about it. The only thing holding us back is possible testing for my 13mo old. If M's genetics test comes back that she is genetically predisposed, I want to have E (my 13mo old son) genetically tested, and then possibly have the Celiac panels run on him as well. Also, possibly having hubby and I tested..... Well you see where this is going. From what I am understanding, if E is genetically predisposed to Celiac, but does not (at least yet) have the disease, the best thing for him to do is eat gluten. By all means, correct me if I'm wrong. But that is the only thing really holding me back from going gluten-free as a household.

You could give him gluten in safer ways...things that aren't crumbly. Perhaps a wheat cereal that you can easily control, or even wheat bran in hot cereal. I've found crumbly things are NO NO's. they get everywhere, and a 3 year old will NOT discriminate about what she touches. And a 13 month old won't care where he spreads it :).

wmramsel Explorer
wmramsel
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Oh I know.  It has been crazy.  M does know not to EAT E's cheerios (my in laws provided us with about 8 boxes.....) but she picks up the snack trap he has them in..... :(  We don't let anyone carry around foods containing gluten, and we do our best to contain it.  I know it isn't ideal, but we are getting better at it.  I have a separate area of the kitchen where her utensils, plates, etc. and snacks are kept, separate cookware and storage containers, etc.  Just need to get through those d@mn cheerios....  We eat mostly whole foods as a rule, with gluten-free Chex for the kids for a snack.  My husband and I will keep bread and other gluten containing snacks at our respective offices.  Toaster is in a separate room, etc.   We keep modifying the way we do things as we learn new and safer ways.  I just threw out a bunch of skin care products.... :(

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pricklypear1971 Community Regular
pricklypear1971
Posted
  On 6/5/2013 at 5:03 PM, wmramsel said:

Oh I know.  It has been crazy.  M does know not to EAT E's cheerios (my in laws provided us with about 8 boxes.....) but she picks up the snack trap he has them in..... :(  We don't let anyone carry around foods containing gluten, and we do our best to contain it.  I know it isn't ideal, but we are getting better at it.  I have a separate area of the kitchen where her utensils, plates, etc. and snacks are kept, separate cookware and storage containers, etc.  Just need to get through those d@mn cheerios....  We eat mostly whole foods as a rule, with gluten-free Chex for the kids for a snack.  My husband and I will keep bread and other gluten containing snacks at our respective offices.  Toaster is in a separate room, etc.   We keep modifying the way we do things as we learn new and safer ways.  I just threw out a bunch of skin care products.... :(

 

I find it goes better the other way - the house is gluten-free and any gluten is controlled like cyanide. 

 

I toss my Dad outside on the patio with his bread. Seriously. He doesn't complain.

 

 

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