Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergies Negative...on To Gi

wmramsel

Recommended Posts

wmramsel Explorer
wmramsel
Posted
  • Author

I would ask about nutrient testing and AI disease monitoring - diabetes, thyroid, etc. that's important.

 

Oh yes, I got that advice from someone else on the forum as well...don't remember who.  The GI has Celiac himself, so I'm hoping....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Oh yes, I got that advice from someone else on the forum as well...don't remember who. The GI has Celiac himself, so I'm hoping....

It sounds like you're doing the right things. I hope your appointments go well.

wmramsel Explorer
wmramsel
Posted
  • Author

Thank you, it is nice to hear that from someone who has "been there."  With something so "iffy" I am constantly second guessing myself.  Then my husband has moments when he second guesses- we were sitting in the allergist's office and he says "Do you think it is at least possible her reaction (when we had to go to the ER) was coincidental to giving her bread?".....I wanted to punch him.  Irrational, I know.  Nonetheless.....

pricklypear1971 Community Regular
pricklypear1971
Posted

Thank you, it is nice to hear that from someone who has "been there." With something so "iffy" I am constantly second guessing myself. Then my husband has moments when he second guesses- we were sitting in the allergist's office and he says "Do you think it is at least possible her reaction (when we had to go to the ER) was coincidental to giving her bread?".....I wanted to punch him. Irrational, I know. Nonetheless.....

I think that's normal. It will be easier as she gets older.

And btw, your house has gluten in it...and she seems highly sensitive...have you considered a gluten-free household? Cc may explain her lingering symptoms of eczema. A low iodine diet may help with the dh type sores.

wmramsel Explorer
wmramsel
Posted
  • Author

I have.  We have talked about it.  The only thing holding us back is possible testing for my 13mo old.  If M's genetics test comes back that she is genetically predisposed, I want to have E (my 13mo old son) genetically tested, and then possibly have the Celiac panels run on him as well.  Also, possibly having hubby and I tested.....  Well you see where this is going.  From what I am understanding, if E is genetically predisposed to Celiac, but does not (at least yet) have the disease, the best thing for him to do is eat gluten.  By all means, correct me if I'm wrong.  But that is the only thing really holding me back from going gluten-free as a household.

pricklypear1971 Community Regular
pricklypear1971
Posted

I have. We have talked about it. The only thing holding us back is possible testing for my 13mo old. If M's genetics test comes back that she is genetically predisposed, I want to have E (my 13mo old son) genetically tested, and then possibly have the Celiac panels run on him as well. Also, possibly having hubby and I tested..... Well you see where this is going. From what I am understanding, if E is genetically predisposed to Celiac, but does not (at least yet) have the disease, the best thing for him to do is eat gluten. By all means, correct me if I'm wrong. But that is the only thing really holding me back from going gluten-free as a household.

You could give him gluten in safer ways...things that aren't crumbly. Perhaps a wheat cereal that you can easily control, or even wheat bran in hot cereal. I've found crumbly things are NO NO's. they get everywhere, and a 3 year old will NOT discriminate about what she touches. And a 13 month old won't care where he spreads it :).

wmramsel Explorer
wmramsel
Posted
  • Author

Oh I know.  It has been crazy.  M does know not to EAT E's cheerios (my in laws provided us with about 8 boxes.....) but she picks up the snack trap he has them in..... :(  We don't let anyone carry around foods containing gluten, and we do our best to contain it.  I know it isn't ideal, but we are getting better at it.  I have a separate area of the kitchen where her utensils, plates, etc. and snacks are kept, separate cookware and storage containers, etc.  Just need to get through those d@mn cheerios....  We eat mostly whole foods as a rule, with gluten-free Chex for the kids for a snack.  My husband and I will keep bread and other gluten containing snacks at our respective offices.  Toaster is in a separate room, etc.   We keep modifying the way we do things as we learn new and safer ways.  I just threw out a bunch of skin care products.... :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Oh I know.  It has been crazy.  M does know not to EAT E's cheerios (my in laws provided us with about 8 boxes.....) but she picks up the snack trap he has them in..... :(  We don't let anyone carry around foods containing gluten, and we do our best to contain it.  I know it isn't ideal, but we are getting better at it.  I have a separate area of the kitchen where her utensils, plates, etc. and snacks are kept, separate cookware and storage containers, etc.  Just need to get through those d@mn cheerios....  We eat mostly whole foods as a rule, with gluten-free Chex for the kids for a snack.  My husband and I will keep bread and other gluten containing snacks at our respective offices.  Toaster is in a separate room, etc.   We keep modifying the way we do things as we learn new and safer ways.  I just threw out a bunch of skin care products.... :(

 

I find it goes better the other way - the house is gluten-free and any gluten is controlled like cyanide. 

 

I toss my Dad outside on the patio with his bread. Seriously. He doesn't complain.

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    2. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    4. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress ...
    5. Scott Adams
      - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748
    AML2013
    Newest Member
    AML2013
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.