Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergy?

Tigercat17

Recommended Posts

Tigercat17 Enthusiast
Tigercat17
Posted

Hi all!

 

I am so overwhelmed right now. I have super itchy skin rash for the last two months that will not go away. I've been to two doctors so far -my PCP and derm. They gave me predisone. It helped, but it didn't go away. AT first I thought it was poison ivy, but I think the predisone should have taken it away if that was the case. The derm doctor gave me two kinds of cream,  took a biopsy and it came back as just an allergy. So it's not DH. I didn't change any products, but I am really sensitive to fragrance. I have to buy fragrance free products. And the weird thing about the rash is it's on my stomach, shoulders, back, arms and legs, but not my face. It makes me wonder if it's my laundry detergent, but I haven't changed that either.

 

So now I'm starting to think it's a corn or soy allergy. I've been doing some research and corn is in everything. I've suspected that I have a corn intolerance since I've been gluten free. I can't eat any of the gluten free cereals except for maybe one or two. and that's only once a week. I know I can't over do it on processed foods. And the last two months I've been going a little crazy with Frito's, so I've been eating more corn lately. Then yesterday I had a gluten free cereal, Frito's and popcorn all in the same day and I swear it looks like the rash has gotten worse. :( The cream the derm doctor gave me is helping, but it's just not going away.

 

I'm not sure what to do. Today I'm trying not to eat any corn products, but I think I already did without knowing it. I think it's in my salad dressing. I've been tested for a corn allergy with blood work and it came back negative, but I heard these tests aren't really accurate.

 

Sorry, I'm so depressed here, but I'm just so bummed. It's hard enough to be gluten free and I think corn might be even harder to avoid. I'll really miss my chips.  :(

 

So does anyone have any suggestions? Should I go to my allergy doctor to get more testing for a corn or soy allergy or should I just try to avoid them on my own?

 

Thanks everyone!

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Did your derm take a biopsy of CLEAR skin right next to an ACTIVE lesion? From what I have read here, a lot of dermatologists don't know how to do a DH biopsy correctly.

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

Did your derm take a biopsy of CLEAR skin right next to an ACTIVE lesion? From what I have read here, a lot of dermatologists don't know how to do a DH biopsy correctly.

I'm not sure. That's interesting though. They actually took two biopsy's from my bum. :( I'll have to make sure it's not a gluten issue for sure and go through everything again, too. I am very careful and I've been keeping a food log for the last almost 4 years now. I am very sensitive. And I swear the only time I have any health problems it's always, always because I'm getting a small amount of gluten that I'm unaware of. And it's usually from gluten-free vitamins. :( I've been taking Kirkman Lab vitamins for the last two years without any problems, but you never know. Gluten is sneaky. I have been eating more Frito's lately and I know I really can't tolerate a lot of processed foods. So maybe I'll eat more wholefoods again for a while to see if it helps.

 

My skin has been so itchy it even wakes me up at night so I'm not getting much rest lately. I never had reactions like this before. :(

 

Thanks for your help Bartfull! :)

bartfull Rising Star
bartfull
Posted

Here's the thing - even if you aren't getting any gluten, DH reacts to iodine. If those Frito's have iodized salt, that could be your answer. Have you been over to the DH section here? I think you should go look at some of the pictures folks have posted and compare your rash to those, then read as much info as you can. Ask lots of questions. Maybe it's NOT DH, but it can't hurt to educate yourself about it. And there are some WONDERFUL people here who can help you. :)

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

Here's the thing - even if you aren't getting any gluten, DH reacts to iodine. If those Frito's have iodized salt, that could be your answer. Have you been over to the DH section here? I think you should go look at some of the pictures folks have posted and compare your rash to those, then read as much info as you can. Ask lots of questions. Maybe it's NOT DH, but it can't hurt to educate yourself about it. And there are some WONDERFUL people here who can help you. :)

 

Thanks Bartful! I didn't know that iodine can cause DH. I eat a lot of chips and nuts almost everyday. You might be on to something. I'll be checking it out.  :)

 

Thanks again!

  • 1 year later...
Finally-45 Contributor
Finally-45
Posted

Like Alex said-- go for histamine intolerance. It has a high likelihood of being unpredictable, weird, and easy to fool Drs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.