Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 Test Results 'normal' And Now Very Confused!


twins66

Recommended Posts

twins66 Newbie

Hi

 

I've been a member for a couple of years but I don't think I've posted on here before?

 

Hope you can help me, I had the blood test done by my GP in 2011 and after being told it was 'normal' I went away confused but willing to take the diagnosis of 'IBS' away with me...but wasn't convinced...

 

Two years go by and I just can't go on anymore like this so I go back for a second blood test...same result same response!  My GP absolutely insists my results are so 'normal' there is no way he could justify referring me for an endoscopy....so I'm at a standstill!  I'm in the UK so if I want to go forward with the endoscopy its got to be done privately. 

 

Before I take this any further, can someone have a look at my test results below and make any sense of what this 'normal' test says!!!  I'm mystified....

 

This week has been horrendous, symptom wise, particularly bad today.... :(

 

Thank you

 

Test 2011 2013 Range Additional Comments from Lab FBC Normal Normal n/a n/a 2011 and 2013:   no action HB 13.8 14.5 11.5-16.5 g/dL   WBCs 6.0 5.4 4.0-11.0 10*9/L   Platelet count 202 211 150-450 10*9/L   RBCs 4.79 4.92 3.80-5.50 10*12/L   Haematocrit 0.40 0.43 0.37-0.48     MCV 84.0 86.9 80-100 fl   MCH 28.7 29.5 26.5-31.5 pg   Neutrophil count 3.60 3.30 2.0-7.5 10*9/L   Lymphocyte count 1.90 1.70 1.50-4.00 10*9/L   Monocyte count 0.40 0.30 0.20-0.80 10*9/L   - 0.00 x10  ̂9/l 0.10 0.10 0.04-0.40 10*9/L   - 0.00 x10  ̂9/l 0.00 0.00 0.0-0.10 10*9/L    0.00 x10  ̂9/l 0.10 0.10 0.00-0.44 10*9/L   Serum total bilirubin level 7 Not Tested 0-17 umol/L   Total Cholesterol: HDL ratio 2.3 Not Tested 0-4.5 mmol/L   GFR calculated abbreviated MDRD   Not Tested     2011:   >90  mL/min/1.73m*2 Erythrocyte sedimentation rate 2 4 1-20 mm/h 2011 and 2013:   normal - no action IgA 3.79 3.68 0.71-3.79 g/L 2011 and 2013:   normal - no action Plasma fasting glucose level 4.8 <4.0 2011:   3.0-6.0
2013:   0-5
2011:   mmol/L
2013:   mg/L
2011 and 2013:   normal - no action Anti-tissue Transglutaminase level Normal Not Tested n/a n/a 2011:   Negative.  Provided patient is not IgA deficient and is on a gluten-containing diet, coeliac disease is unlikely.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



twins66 Newbie

Oh dear...those results didn't paste in the box like that before...i'll try and post them again...

twins66 Newbie

Test                                                         2011                             2013                      Range                                  Comments from lab

FBC                                                                       Normal                               Normal                               n/a                                         2011 and 2013:   no action

HB                                                                         13.8                                      14.5                                      11.5-16.5                         

WBCs                                                                     6.0                                         5.4                                         4.0-11.0

Platelet count                                                      202                                       211                                       150-450

RBCs                                                                      4.79                                      4.92                                      3.80-5.50

Haematocrit                                                         0.40                                      0.43                                      0.37-0.48

MCV                                                                       84.0                                      86.9                                      80-100

MCH                                                                       28.7                                      29.5                                      26.5-31.5

Neutrophil count                                                 3.60                                      3.30                                      2.0-7.5

Lymphocyte count                                               1.90                                      1.70                                      1.50-4.00

Monocyte count                                                   0.40                                      0.30                                      0.20-0.80 

- 0.00 x10  ̂9/l                                                        0.10                                      0.10                                      0.04-0.40

- 0.00 x10  ̂9/l                                                        0.00                                      0.00                                      0.0-0.10

0.00 x10  ̂9/l                                                           0.10                                      0.10                                      0.00-0.44 

Serum total bilirubin level                                  7                                             Not Tested                         0-17

Total Cholesterol: HDL ratio                               2.3                                         Not Tested                         0-4.5                                   

GFR calculated abbreviated MDRD                2011:   >90  mL/min/1.73m*2                                         No range

Erythrocyte sedimentation rate                        2                                             4                                             1-20                               normal - no action

IgA                                                                           3.79                                      3.68                                      0.71-3.79                        normal - no action

Plasma fasting glucose level                               4.8                                         <4.0                                      2011:   3.0-6.0              normal - no action

                                  2013:   0-5

Anti-tissue Transglutaminase level                 Normal                               Not Tested                               n/a                            

Anti-tissue Transglutaminase level comments: 2011 -  Negative.  Provided patient is not IgA deficient and is on a gluten-containing diet, coeliac disease is unlikely

twins66 Newbie

As I said before, these are the results over the last two years....any explanation would be very helpful I cant seem to find anything to compare it to...much appreciated...sorry for the way they posted...new to all this! :wacko:

powerofpositivethinking Community Regular

it looks like you produce enough IgA, but it appears that they didn't even run the ttg IgA tests this time  :blink:

 

IgA                                                                           3.79                                      3.68                                      0.71-3.79                        normal - no action

Anti-tissue Transglutaminase level     Normal                               Not Tested                               n/a                       

 

is it possible to get a complete celiac antibody panel run?  

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing* you do make enough IgA

check out page 12 in this report for testing information:

Open Original Shared Link

frieze Community Regular

yeah, they didn't even run the one test they would cover (pay for).  You really need to find a way to pay for private testing.  good luck

Cobalt Newbie

I have had "IBS" for about 15 years, until 2 years ago my Dad was diagnosed with Coeliac disease.  I went to my GP for testing he performed a limited blood test from memory it was just the basic Iga test.  It came back negative and my GP told me to go away I just had IBS so live with it.  I moved house recently and signed on with a new GP, I mentioned the test when I registered with him and he told me he had seen quite a few false negatives. He asked me to go gluten free for a month and the change to my health was amazing from this he was happy to refer me to have the Endoscopy, unfortunately I had to go back on to gluten for 6 weeks which was hard, but have finally had the test.  Results should be back in 3 weeks.

 

Having been through this I am so glad I changed GP maybe you should consider it, but I understand it may be luck if you get a new GP that is sympathetic.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    3. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    Suelle
    Newest Member
    Suelle
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.