Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Similac Formulas


Rowena

Recommended Posts

Rowena Rising Star

My 2 almost 3 month old is on Similac Alimentum due to a milk allergy, but since I've got a gluten intolerance, I'm also worried it might manifest itself with him.  Its supposed to be easy on the the tummy for babies with food allergies... But I was wondering is it really without gluten?  Or ANY formula for that matter?  I mean when I read the can I noticed it said 'Casein' with some variation of saying it was made more digestible...  (How is that milk-free?)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

it's not milk free, but it may have been pre-digested so as not to trigger the response that your son would experience.  I have not seen ANY formula contain gluten (though I admit this is second hand information, hopefully moms who had to verify formula was gluten free for their little ones can help).

greenbeanie Enthusiast

If your son is tolerating Alimentum well, that sounds like a good sign. My daughter had extensive digestive problems and moderate neurological problems starting when she was just a few weeks old and exclusively breast feeding. She still had problems even after I'd completely stopped eating dairy (though that did help a little bit). At five and a half months, an allergist and pediatric GI doctor both agreed that we should try formula, since she was obviously reacting to something in my breast milk. Her food allergy tests were repeatedly negative. We did a brief trial of Alimentum, and she couldn't tolerate that either. My understanding is that it is milk-based, though the proteins are broken down extensively to make it easier to digest. I have no idea if it contains gluten, though I'd be surprised if it does. If you call the manufacturer, they should be able to tell you.

We finally ended up putting my daughter on Neocate, which is an amino acid formula with no milk (or gluten or other proteins) at all. Her recovery was so rapid that everyone was astounded. The neurologist discharged and GI both discharged her after six months on Neocate because she was doing so well. But the problems returned gradually once she started solids...and here we are another three years later, when she's just been diagnosed with celiac. In retrospect, that pretty much explains her entire health history!

This is a long-winded way of saying that if your baby seems to be doing well on Alimentum, that's great and there's probably no need to switch formulas. But if he does start having trouble digesting it, it's good to know that there is another option that has no milk in it whatsoever. Neocate is super-expensive, though - like over $220 per month in the U.S. - so it's definitely not a formula of choice unless it's really necessary. We were lucky that our insurance treated it like a prescription and paid for most of it.

Rowena Rising Star

Thing is, I'm not sure its helping, but we tried soy and he wouldn't even swallow that (I don't think he liked the flavor of it... not that I blame him, I don't even know how he tolerates Alimentum.  It smells like crap!)... he's got a lame *insert a stream of four letter words* pediatrician I do not trust in the slightest, but stupid insurance problems won't let me have the one I do trust with my baby!

I'm just scared to death for my little one, simply because I have so many problems, that people don't seem to know what's up with me... I don't want life to be like that for him, and I am assuming to be on the safe side that he has the same intolerances/allergies that I do.  

 

As for the Neocate, my sister-in-law's sister had a baby with wheat/gluten, soy, nuts, dairy and a few others... is the Neocate soy free?  Because they wanted to put the baby on formula but all of them have soy so the mother is continuing to bf, though a lot of the things stay in her system a while, so the improvement for the baby despite the mom keeping to a blan diet isn't drastically improving...

cyclinglady Grand Master

I can't comment on the formula (I breast fed for over two years), but since my husband was gluten-free and I had food allergies (now celiac disease too), I followed my allergist's advice on how to introduce foods to my daughter.  No solids until she was 8 to 9 months, then veggies first month, then added fruit for another month,  then meats.  No grains of any kind until she was a year old.  No eggs, dairy or wheat until she was two years old.  Her pediatrician balked, complained, etc., but the end result was worth it.  When she was four he mentioned that she had the "thinnest chart", meaning that she was so healthy.  She never went in for illness until she started preschool (all those shared germs).  She's healthy, slender and active as teen now.  She's consuming little gluten as we are are gluten-free household.  I only buy her gluten products in packages.  She also eats gluten at her friend's homes and at restaurants.  She has not be tested for celiac disease yet. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    2. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.