Neurological Manifestations Of Gluten Sensitivity

[jcc]

I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3. If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological aspects of gluten sensitivity.

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Cara

[Nevadan]

Cara,

Welcome to the neighborhood. I can second your suggestion to visit the link you listed, particularly for those with neurological presentations and/or for those of us who don't have DQ2 or 8, but do have DQ1's. The site has lots of info regarding what gluten can do to some people even if they don't have celiac disease. I find that site a very good complement to this site.

George

(aka GeoInNV)

[nettiebeads]

I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3.  If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological aspects of gluten sensitivity.

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Cara

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Wow! that is impressive! Even more reasons to stay 100% gluten-free!. Also a great resource for those whose drs. AREN'T in the know. Thanks!

[Matilda]

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[jcc]

Cara, thank you so much so all the superb work you've done.

Matilda

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oops...duplicate entry..see next!

[jcc]

You're welcome! As time goes on The Gluten File has become a collaborative effort of many, so I don't want to take all the credit for it, but I truly appreciate your kind words and its nice to know the information is making its way around.

The Gluten File began out of pure frustration because although my family looks very much like your average celiac family...we do not have celiac disease...don't even carry the main genes. We are definitely gluten sensitive, though!  I just kept collecting information that I found fascinating...that "fit" and supported our unique presentation...which turns out is not so unique but grossly underrecognized and unacknowledged by most celiac experts.

But,  I have to admit that even I have not read EVERYTHING in The Gluten File! I do think its a great collection of data, though  .

If you've been reading Braintalk you probably know my story, but in case anyone else is curious, you can find it second post here:

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Anyone who feels so inclined might want to add their own entry, even if you don't have the time to take on an additional forum. I believe we can learn from each others experiences!

I also believe the more forums the merrier...the more people we can reach. What I find rewarding about Braintalk is that it is this huge umbrella forum of hundreds of neurological, neuromuscular, neuropyschiatric diseases...so we can reach so many people with neurological disease who would never in a million years think of gluten as the culprit...especially when it stands alone without any gut evidence of celiac disease.

This seems like a friendly place. I may pop in and read from time to time! We call it 'boarding around'...lol!

Cara

[skbird]

Welcome Cara - nice to see you post over here. I can't believe I haven't seen Al pop in yet...

Anyway, always good to help more people make connections, especially about non-Celiac gluten intolerance.

Take care!

Stephanie