Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neurological Manifestations Of Gluten Sensitivity

jcc

By jcc
in Related Issues & Disorders

Recommended Posts

jcc Rookie
jcc
Posted

I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3. If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological aspects of gluten sensitivity.

Open Original Shared Link

Cara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nevadan Contributor
Nevadan
Posted

Cara,

Welcome to the neighborhood. I can second your suggestion to visit the link you listed, particularly for those with neurological presentations and/or for those of us who don't have DQ2 or 8, but do have DQ1's. The site has lots of info regarding what gluten can do to some people even if they don't have celiac disease. I find that site a very good complement to this site.

George

(aka GeoInNV) :)

nettiebeads Apprentice
nettiebeads
Posted
I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3.  If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological aspects of gluten sensitivity.

Open Original Shared Link

Cara

<{POST_SNAPBACK}>

Wow! that is impressive! Even more reasons to stay 100% gluten-free!. Also a great resource for those whose drs. AREN'T in the know. Thanks!

Matilda Enthusiast
Matilda
Posted

..

jcc Rookie
jcc
Posted
  • Author
Cara, thank you so much so all the superb work you've done.

Matilda

<{POST_SNAPBACK}>

oops...duplicate entry..see next!

jcc Rookie
jcc
Posted
  • Author

You're welcome! As time goes on The Gluten File has become a collaborative effort of many, so I don't want to take all the credit for it, but I truly appreciate your kind words and its nice to know the information is making its way around.

The Gluten File began out of pure frustration because although my family looks very much like your average celiac family...we do not have celiac disease...don't even carry the main genes. We are definitely gluten sensitive, though!  I just kept collecting information that I found fascinating...that "fit" and supported our unique presentation...which turns out is not so unique but grossly underrecognized and unacknowledged by most celiac experts.

But,  I have to admit that even I have not read EVERYTHING in The Gluten File! I do think its a great collection of data, though  :P .

If you've been reading Braintalk you probably know my story, but in case anyone else is curious, you can find it second post here:

Open Original Shared Link

Anyone who feels so inclined might want to add their own entry, even if you don't have the time to take on an additional forum. I believe we can learn from each others experiences!

I also believe the more forums the merrier...the more people we can reach. What I find rewarding about Braintalk is that it is this huge umbrella forum of hundreds of neurological, neuromuscular, neuropyschiatric diseases...so we can reach so many people with neurological disease who would never in a million years think of gluten as the culprit...especially when it stands alone without any gut evidence of celiac disease.

This seems like a friendly place. I may pop in and read from time to time! We call it 'boarding around'...lol!

Cara

skbird Contributor
skbird
Posted

Welcome Cara - nice to see you post over here. I can't believe I haven't seen Al pop in yet... :)

Anyway, always good to help more people make connections, especially about non-Celiac gluten intolerance.

Take care!

Stephanie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748
    Naner4
    Newest Member
    Naner4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.