Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Frustrated Just Want To Give Up On This...ughh Experts Advise Please!


bekkaz

Recommended Posts

bekkaz Apprentice

I won't get into my extremely long story but I have been having ongoing stomach issues that started back in Nov.  Before that for as long as I can remember my stomach would swell up after I would eat, and I would like 4-5 months pregnant.  I had two endoscopies, showing erosive gastritis, I had a colonoscopy showing mild inflammation.  My celiac biopsy's and blood tests came back negative.  I tested myself with enterolab, came up positive.  I cut gluten, my stomach continued to really bother me.  I was put on anxiety pills saying that it would also help with my stomach issues.  I had other blood tests done, skin prick tests, etc.  I came up positive on one blood prick test, with needles on my back to Soy, Corn, Chicken, Egg and Dairy.  The next time I had it done on the arm with the little plastic type needles...came up positive to nothing.  Begged the Dr. to do an IGG blood test, they sent that test through Mayo, Mayo sent it to Viacor.  It came back 15x higher than normal to dairy.  These Dr's that I am seeing aren't that serious about these tests.  A naturopath Dr. I seen did some stool testing and found some bacteria's, that I read are part of the normal gut flora, but mine was just really high.  She rx'd me 30 days of Cirpofloxin.  I started feeling somewhat better and started "cheating" and messing with gluten again about 3 weeks ago.  My stomach is slowly starting to bother me again, I am getting that same acid burning feeling and am SCARED TO DEATH to go through this stomach pain again.  I lost 30 lbs in a month and a half.  I am vitamin D deficient,  I have fat malabsorbtion issues, and am not breaking down vegetable fibers either.  I am so frustrated because I just want to know WHAT FOOD IS BOTHERING ME.  Is it freaking gluten, is it dairy or what is it.  I am beyond frustrated, I don't want to cut both of these out if not needed.  I am confused on how to do an elimination diet right to figure this out.  I am really desperate for help and advice.  Honestly, gluten would be easier for me to cut than diary.  While on gluten-free and still eating dairy I was still having some symptoms of the bloating with dairy.  How can I tell what I am reacting to?!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Welcome Bekkaz,

 

I am hoping you figure out what is ailing you.  It does sound like gluten problems is a strong possibility.  You seemed to have had a positive diet trial.  I think you should get tested for celiac.  You must be eating gluten for the testing.  Someone will likely list the tests for it to help you know which ones.  When it is done go gluten free.  It sounds likely you should go dairy free right away.

 

Going dairy free is easy.  I should know, as I have been totally dairy free since I removed butter a few months back and milk free for at least a year.   Instead of dairy milk one can use coconut milk, nut milk, or rice milk.  You likely can get gluten free non dairy milk at a store near you.  Instead of butter one can use coconut oil, nut butter, or olive oil.  You can learn to enjoy these things.

 

Ice cream sub:  One can coconut milk, 2 tablespoons honey, 20 frozen strawberries or other frozen fruit.  Whirl in blender.  Wooola, soft serve Ice cream. 

 

New Veggie:  Fennel bulb.  It is good for digestion it has a light licorice flavor.  You can find it in the produce section.  It sort of looks like an onion bulb with green feathery plumage.  Slice and steam or stir fry it.

 

You can find subs, right now you need to do what you know to do.  I think you can, because I have done it.

 

Get well, Get well, that stomach pain doesn't sound like anything to put up with.  ***

 

D

notme Experienced

have you tried using a food journal?  may help identify what is causing you problems.  also, if the rx was ciprofloxican, it's an antibiotic and will probably kill all the 'good' digestive bugs you need in your gut, as well as any infection your doc thinks you have (?) side effects include the big D and nausea.  you might want to add a probiotic to help re-populate your good gut bacteria.  (it takes a minute for your body to get used to taking it every day - sounded like there was a party going on in my intestines the first week or so LOLZ)  i use a food journal combined with (boringggggggg) elimination diet when something just ain't right and i can't figure it out. 

w8in4dave Community Regular

When you say this :" I started feeling somewhat better and started "cheating" and messing with gluten again about 3 weeks ago.  My stomach is slowly starting to bother me again, I am getting that same acid burning feeling and am SCARED TO DEATH to go through this stomach pain again"  Sounds like you already know what it is ..... 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.