Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Suggested A Diigestive Enzyme ...

FloB

By FloB
in Coping with Celiac Disease

Recommended Posts

FloB Newbie
FloB
Posted

The chiropractor that diagnosed me Gluten Intollerent has also suggested Magnesium, a Digestive Enzyme and another Supplement (for intestinal healing) - is anyone else taking this extra stuff or has anyone heard about it????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


surviormom Rookie
surviormom
Posted

For 2 months now, I have been taking 2 different probiotics, magnesium, digestive enzymes, extra vitamins, and Betaine HCL.  Managed to go on vacation and I know there was cc and only minor impact.  Everyone is different, but I just could not believe how well I came back.  I really expected more of a reaction after all I had been through this year.  I really think these things helped. Good Luck.

FloB Newbie
FloB
Posted
  • Author

Just wondering what made you start taking your supplements??? Mine is to hopefully heal my IBS which usually results in Constipation, but now I experience more Diarrea, Severe Bloating + Gas. Been trying it for 4-5 months already! Are Diarrea, Gas & Bloating - Detox Symptoms from coming off of Gluten??? 

1desperateladysaved Proficient
1desperateladysaved
Posted

Magnesium can cause diarrhea.  My chiropractor does not want me to take it when I have diarrhea.  I lay off for a couple days and go back to a smaller dose working my way up to a higher dose if necessary.

 

I am using Genuine NZimes Dr. Howell's Formula Extra Strength.  It is in powder form and you sprinkle it over your food.  These I purchase through Azure Standard.  These are working well for me.  My Functional medicine nurse had told me that my villi were too damaged to do their job of telling my pancreas to fire.  This is reversible, but in the meanwhile extra enzymes are needed to break down my food.  Since starting enzymes I have seen less unprocessed food coming through.  I have also used enzymes provided by my healthcare practitioner and ones that I purchased at a nutrition store.

 

I have used IGG for intestinal healing.  I felt that it helped me.  My son took glutamine to help heal his gut; he had parasites.  This seemed to help him.  The osteopathic Functional Doctor recommended them for him.

 

I also use probiotics.  I am using Restore Probiotic.  This is in powdered form and I just add it to water.  I think that it is doing something for me.

FloB Newbie
FloB
Posted
  • Author

Thanks, I think I need to regulate the amt. of Magnesium I take more - like you are doing. I just get so afraid of being constipated again. I really appreciate all that you've shared with me :)

surviormom Rookie
surviormom
Posted

Just wondering what made you start taking your supplements??? Mine is to hopefully heal my IBS which usually results in Constipation, but now I experience more Diarrea, Severe Bloating + Gas. Been trying it for 4-5 months already! Are Diarrea, Gas & Bloating - Detox Symptoms from coming off of Gluten??? 

I was already taking TruFlora to heal my insides, but after a bacterial infection my GI told me to take Florastor as well, so two probiotics.  

 

Celiact, after looking over all of the vitamins and supplements I am low on, I was already taking supplements of some of them and I was low?  So, I chose Celiact, reading the label I can see I am getting mega doses.  I feel better, I have finger nails I can use, for the first time in my life, without breaking.

 

My Gastric Acid was at 1, so instead of taking all of the scripts that the GI wanted me to take, it was suggested I try Betaine, I did, it works.

 

The Enzymes, I am still new on them, I think they help.  Case in point, my family went on vacation, our host family had a very gluten kitchen, the impact on me was very minor.  I tried to stick to only clean healthy foods, and braced for the worst, it never came.  We did eat out a lot, again, which was worse, a gluten kitchen or a gluten restaurant, but I kept it to foods that would not be impacted.  Salads, meats, fruits, and I introduced them to Gluten Free in the store they shop at.

 

So, I see that they are working.  My list of problems are much greater than what you will see when I post this.  Those are just what I am Dx with.

 

I had constipation most of my life, when I was a kid, it was D.  Now its a mix, before the vacation, I think I understood normal.  I have bad gas too, they put me on a very restricted diet after an endoscopy, lots of rules to eating, even sleeping.  Right now I have a cough, I think its related to my Esophagus problems, carry over from vacation.  But I will keep on with my supplements and enzymes and the probiotics I will never miss, I do not want to go through that bacteria again.  

 

DId this help?  I hope so.  Hang in there.  It gets better. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,703
    • Most Online (within 30 mins)
      7,748
    Bobbie Jean
    Newest Member
    Bobbie Jean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Grahamsnaturalworld
      Refractory celiac disease

      By Grahamsnaturalworld · Posted

      Where can I find a gastro in adelaide who can diagnose refractory celiac disease have seen 3 so far and don't understand the most obvious question, why my celiac symptoms did not resolve on a gluten free diet the symptoms just got worse as it is attacking my nervous system. 
    • ShariW
      GliadinX/Tolerase G

      By ShariW · Posted

      I recently traveled to Spain and Portugal. I was with a tour group, they knew I needed to be gluten-free and made sure the kitchens preparing the group meals were aware. But just in case, I took Gliadin-X with me and took it for every evening meal - and most other meals. The one time I got glutened was from lunch early in the trip - had to be from cross-contamination. I had not taken Gliadin-X before that meal, which made for a pretty miserable day. Learned my lesson... 😞 
    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi trents, thanks for the response.  The 2nd opinion doctor said that if my CRP is still elevated at that time, he would advise me to look at Crohns/UC or another autoimmune issue. The colonoscopy I had this year seemed to rule those 2 out for now so he still believed celiac may explain it. No previous doctors have suggested any explanation for it even after calling to tell me it was a concerning result.  I guess it feels tough knowing I have positive blood testing, permissive genetics, and visible duodenum changes... and somehow it's NCGS instead of celiac. I'm still surprised the biopsies came back negative when the doctor was so sure they would be positive.
    • trents
      Diagnosis confusion

      By trents · Posted

      "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong! This is a highly accurate test for celiac disease, that requires specialized expertise to perform and interpret, and it is more expensive than other blood tests. It is generally used as a last test to confirm celiac disease after a positive tTG-IgA test. The sensitivity of a test refers to its ability to correctly identify individuals with the condition. For the EMA-IgA blood test, the sensitivity is generally very high, ranging from 90% to 98%. This means that the test can accurately detect celiac disease in a significant percentage of people who have the condition. The specificity of a test refers to its ability to correctly identify individuals without the condition. For the EMA-IgA blood test, the specificity is also high, typically around 95% to 100%. This indicates that the test can effectively rule out celiac disease in individuals who do not have the condition. Taken from the following article: Looking at the whole picture, I am wondering if you are transitioning from NCGS to celiac disease. Some experts in the gluten disorder field believe NCGS can be a precursor to celiac disease.
    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi all, just wanted to post an update.  I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom.  Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was to stay with a celiac-level gluten free diet (no CC) for 6-12 months then retest to make sure TTG-IGA is still negative. He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac.  Today I had a follow up with the original GI that performed the scope. She is confident it is NCGS and says I can still have gluten sometimes. When I asked about the visible duodenum damage, she said it is just "irritation" from gluten because the biopsies were negative. She also said that my positive EMA isn't valuable because it has "a high false positive rate."  I guess I'm having trouble reconciling the totally different advice from these 2 GI's. I want to believe the new doctor more at this point because what he said just makes more sense to me, and he gave an actionable timeline for possible next steps. Feeling lost and disappointed at this point and wanted to write it down here in case anyone has input. Thank you.   
×
×
  • Create New...