Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Celiac May Be Associated With Ic


Ladyofire

Recommended Posts

Ladyofire Newbie

I noticed many of you show symptoms of Interstitial Cystitis. For those who did not know IC is associated with Celiac, IBS, Fibromayalgia, etc. IC is a non curable bladder disease, and can be read about here www.ichelp.org I have lived with this since I was at least 12 and can answer any questions if possible. Good luck, we are stronger than most!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I can't remember if I have this or not.  I do have some bladder issues.  The doc wanted to stick up a tube to take a look to see if the bladder was irritated.  I knew it was irritated.  I looked up the treatment for the problem they were looking for and it would be following a diet.  7/10 things on the diet I already knew to be a problem.  I opted to not do the test and just avoid the three other foods.  Since going gluten free and recovering my bladder has usually been peaceful.  I would be interested in hearing more about this problem if it is what I am talking about.  I am curious to know if my bladder will eventually tolerate these things.

 

I checked and IC is what I thought.  Chocolate and tomato were on the list.  I would like to see that it is connected with celiac and if there must be strict avoidance of all irritants, or if it causes only temporary symptoms.

 

D

whitepine Apprentice

I was diagnosed with IC in Feb of this year and it was kind of a stepping stone to controlling my problems. I still have issues though. I take prelief wit meals, trying glucosamine and marshmallow root. my symptoms get worse if I drink something acidic or if I am close to my period. Sometimes I have to wake up over 5 times in the middle of the night. It's frustrating. I went through the instillations but I didn't make it to the final one due to the fact that the specialist was going on holidays for 2 weeks and they could not be performed without him being present in the hospital. All of my symptoms came back and I just couldn't be bothered to drive the hour and wait 3 hours at the hospital for another 6 weeks.  So it was a waste of time for the 4 weeks I had them. I've heard of people being able to do them themselves at home.



 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,493
    • Most Online (within 30 mins)
      7,748

    JJC01
    Newest Member
    JJC01
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.