Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed, Need Help With Some Food Questions!


deluxlux

Recommended Posts

deluxlux Newbie

Hello guys,

I was diagnosed with Celiacs like 2 weeks ago, but been suspecting it for couple of weeks before that, while testing.

Now that my doc and I am sure of my diagnose, I really need to make somekind of diet to keep me in shape since im working out in the gym a lot and I lost like 6 kilos so far, after going gluten free :(. I also have no vili left, so i need to keep my weight somehow...

And here in Bulgaria, there is not much stuff about the desease which can help me out, including labels on foods etc.

I would love if someone more experienced and into things answer these questions

 

 

1. I need a gluten free protein, for recovery after workouts. So i contacted most manufactures and the ones who told me their products are gluten free are OLIMP -SPORT. (Croatian brand). But when i check the ingrediends list of the gainer powder,  I saw some ingrediends like dextrose, which I belive might be gluten or am i wrong?

Ingredients are : maltodextrins, dextrose,whey protein concentrate,micellar casein,ultrafiltrated egg protein, malic acid,xanthan gym, carboxy methyl celulose.

Are any of these dangerous for Celiacs, since its really important for me to take some kind of gainer every day :(

 

 

 

2. Are TOBLERONE bars 100 % gluten free, since I really need to eat some kind of chocolate between meals and Lindtt cocoa ones turned out to have cross contamination or whatever.

 

3. I decided to drink loads of juices to keep me well energyzed also, but now i see "glucose-fructoze" in the ingredients of most. Is that dangerous for Celiacs?

 

4. Cheese. Can I eat cheese or its not safe? LIke balkan white cheese is the one we have here.  Like this one :

Open Original Shared Link

 

5. Ice cream. Since all the gluten free brands i find in the internet are like different here in my country, what kind of icecream i can trust that is full gluten free or something.

 

6. how to help my vili recover faster. I read that Glutamine helps recovery, but what else? Because I do not want to lose anymore weight.

 

Any tips from someone who workouts with Celiac Desease would be awesome also.

 

Cheers and hope u guys can help me with most of this stuff, because im really frustrated.

Before the diagnose I had a perfect body, but I felt bad inside and tired all the time i guess because i was eating gluten.

Now that im going gluten free, I lost all ive worked out for years, but at least im starting to feel better a bit as health.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I only know what the labeling laws are in the US.  So I'm answering from that perspective.

 

Cheese should be safe.  I haven't seen any with gluten except for a few gourmet cheeses made with beer.  Perhaps you could call a company that makes the type of cheese you are talking about and ask.  However, if your villi are severely damaged, it will be hard to digest dairy products.  It might help to wait 6 months or more, until you heal to try dairy products.

 

Glucose and fructose are just sugars.  They should be gluten free. 

 

For most foods, I just read the ingredients.  In the US, if its made from wheat it will be labeled. 

kareng Grand Master

Hello, and welcome to the board.

Glucose, like all sugars, is highly refined and is considered safe regardless of the source.

Shelley Case, RD, is a source I trust completely on these issues. In her book, Gluten-Free Diet A Comprehensive Resource Guide, she lists as gluten-free and safe for celiacs:

Dextrose;

Fructose;

Glucose;

Glucose syrup;

Lactose;

Maltose;

Sucrose.

The Canadian Celiac Association also lists all of the above sugars as safe.

Make your own decision. As I said, I trust Shelley Case.

 

 

This is an explanation from another thread that might be helpful.

ibjonezy Newbie

OP, most if not all recovery protein products that are whey are already gluten free as far as I know.

deluxlux Newbie

OP, most if not all recovery protein products that are whey are already gluten free as far as I know.

 

 

thanks mate.

Well i just checked the ingredients of the gainer which i take to maintain my weight and they are as follows:

-maltodextrins

-dextrose

-whey protein concentrate (whey??)

-micellar casein

-ultrafiltrated egg protein

 

The company claimed the product is gluten free, should i trust them and continue taking it on everyday routine, or some of those might be dangerous for Celiacs?

thanks.

 

Also i just read, that old fans and stuff are almost impossible to clear from gluten traces, so i need to buy brand new ones or?

w8in4dave Community Regular

Wow I didn't know there was something to help Villi recover faster. I will have to look that up. Thanks! 

kareng Grand Master

whey & casein are milk.  If they say Gluten free, they likely are.

 

I don't understand about fans.  Did you mean pans? :D

 

Have you read this thread for People new to Celiac:

 

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deluxlux Newbie

whey & casein are milk.  If they say Gluten free, they likely are.

 

I don't understand about fans.  Did you mean pans? :D

 

Have you read this thread for People new to Celiac:

 

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

yes i belive it was supposed to be Pans :D

also i just read i gota find a freakin gluten free SHAMPOO, toothpaste, and what not ...

so are sun tan protection creams or tan boosting creams also with gluten and i cant use them anymore or..?

:D

kareng Grand Master

yes i belive it was supposed to be Pans :D

also i just read i gota find a freakin gluten free SHAMPOO, toothpaste, and what not ...

so are sun tan protection creams or tan boosting creams also with gluten and i cant use them anymore or..?

:D

 

 

In the US, I have never seen a toothpaste with gluten.  The shampoo and lotions are just because they can get in your mouth.  If you don't think you will get them in your mouth, don't worry about it.  I don't worry about sun lotions because I don't get them in my mouth.  I haven't seen any with anything obviously wheat.  You could find wheat germ oil maybe.   I have seen wheat germ oil in shampoos and lotions occasionally.

deluxlux Newbie

In the US, I have never seen a toothpaste with gluten.  The shampoo and lotions are just because they can get in your mouth.  If you don't think you will get them in your mouth, don't worry about it.  I don't worry about sun lotions because I don't get them in my mouth.  I haven't seen any with anything obviously wheat.  You could find wheat germ oil maybe.   I have seen wheat germ oil in shampoos and lotions occasionally.

thanks kareng for all ur replyes.

i decided to follow this SCD *strict carbohydrate diet"or whatever, which eliminates even more stuff than gluten, but makes ur guts heal faster, because u do not feed the bacteria in it with sugars etc.

Hope it helps me get my weight back fast enough...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    Cara Evans
    Newest Member
    Cara Evans
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.