Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh And Medication


Brookiebaby

Recommended Posts

Brookiebaby Newbie

I have been recently diagnosed with Celiac and DH, about a week ago. I've managed to regulate my diet, somewhat, for the past two days now. I am still breaking out horribly on my hands and I am guessing it's from a medication I take for sleep. Trazodone. I've been reading that there are a lot of medications out there that contain gluten. I've decided not to take it tonight and for the next few nights, just to see if anything improves.

 

Does anyone else have issues with certain medications? Did you have to stop them all together?

 

Any info would be greatly appreciated. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Welcome to the board!

First, your rash is not going to go away overnight or in a week..... it takes time. You need to make sure your kitchen & everything you put in your mouth is totally gluten free (gluten-free). DH is sensitive to the tiniest amount of gluten. And you need to make sure all your meds both prescription & OTC are gluten-free. NSAID's aggravate the rash. Iodine intake can be a factor --- most of us find it makes the rash go crazy. Steroids will calm the rash but the second you stop them the rash will make you pay in spades by coming back w/ a vengeance! 

 

First, get your home & food in order. See:

Newbie 101 for celiacs
 
 
Help for the Itching, Stinging, Burning, Pain of DH:
 
 
And read lots & lots of threads here on the dh forum. Then you will begin to understand what you're up against.
Simone52 Newbie

 

Welcome to the board!

First, your rash is not going to go away overnight or in a week..... it takes time. You need to make sure your kitchen & everything you put in your mouth is totally gluten free (gluten-free). DH is sensitive to the tiniest amount of gluten. And you need to make sure all your meds both prescription & OTC are gluten-free. NSAID's aggravate the rash. Iodine intake can be a factor --- most of us find it makes the rash go crazy. Steroids will calm the rash but the second you stop them the rash will make you pay in spades by coming back w/ a vengeance! 

 

First, get your home & food in order. See:

Newbie 101 for celiacs
 
 
Help for the Itching, Stinging, Burning, Pain of DH:
 
 
And read lots & lots of threads here on the dh forum. Then you will begin to understand what you're up against.

 

Hi Brookiebaby!  

 

Sorry you have joined the world of Celiac.  Not a fun club.  But a glute-free diet is going to make you feel new again.  Some of us are more sensitive to gluten than others.  Some of us cannot lick an envelope.  Some of us can.  It will take some time for you to sort out what you can and cannot do/eat/use/take.  

 

I assume that since you are newly diagnosed, you have had some serious symptoms.  Usually digestion.  Rapid transit. And pain.  And malabsorption. If you are lucky, you have caught it early enough that there may not be permanent damage.  I was diagnosed at age 40.  The secondary problems are many.  But more about me later!

 

Tell me (us) about you.  How old are you? (approximate is fine!)  How long have you been exhibiting symptoms?  Absolutely miserable or: kind of yucky or:  this and that weird symptom or:  almost incapacitated for years.  This evil disease can take many forms.  The exciting and great news is that you can recover.  In many cases 100%!

 

Do not for a moment think that the symptoms (evil demons :ph34r: ) will go away after a few days or even weeks or months.  It will take some time.  It has been wreaking havoc on you and your body for a long time.  Be patient.  Do not for moment think either that you can change your diet a little.  Or just modify. Or just reduce.  Or eat something on a special occasion.  Or just on the weekend.  This is serious business and if you want this rash and any other symptom to go away you have to get every speck of gluten out of your house!  Stay away from restaurants for a while if you can.  Things are much easier these days and restaurants are certainly more aware but the more thoroughly you can eliminate any possible trace of this stuff the faster and easier will be your recovery.  

 

Again, there are many silver linings.  There are intestinal diseases that cannot be controlled with diet.  This can be.

 

The rash sucks.  Period.  It is insidious, crafty, mean and determined.  Many of us have been playing around with it for years.  Some things work for one, not for another.  It will be a guessing game for you for a while.  It could leave you in two weeks or hang around for two years.  There are many wonderful suggestions on this Board for itch relief and pain control.  Again, what works for me may not for you.  We are all unique. 

 

As for medications.  Most can be researched on-line.  Trazadone is used for sleep issues and depression.  There are alternatives for both if you are not happy with it.  But I can definitely tell you that there is no way that two days of a gluten-free diet will tell you anything yet.  Don't get discouraged.  Be diligent. I would love to hear your progress.  Even day by day.  Keep in mind that you will not just regulate your diet.  You will completely change it.  (you will love the results)!

 

YOU ARE NOT ALONE!!  There are so many here that will hold your hand (itchy as it is!) and walk you through each of your fears, experiences, questions, discouragements and victories!

 

Stay tuned......

 

Be well....

 

Simone :P  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.