Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Gluten Be The Problem

MChase

Recommended Posts

MChase Apprentice
MChase
Posted

Hi.  I am new here and new to Gluten-free.  I am at my wits end with things.  My Dr says that I either have Celiac or Ulcerative Colitis (or both).  But the more I read, the more it seems to point to Celiac or at least a Gluten Intolerance.

 

Last month, I was in the ER with severe pain.  Felt like active labor.  They did Xrays, CT scan, Ultrasound.  They said I had Diverticulitis and to follow up with my dr in 24-48 hours.  My primary says I do not have that, but with my symptoms, she said it is either Celiac or UC.   Since being in the hospital on Aug 27th, I can barely eat anything.  I have lost 8lbs.  I can barely get out of bed.  My dr told me that I have to eat my normal diet to get accurate results.  I did a 72 hour trial run of a gluten free diet and felt better by day 2.  I didn't have a headache and I actually fell asleep at night.  Usually after a severe episode (every other month), I put myself on a liquid diet for a few days then go back to normal diet.  This time , I can barely eat "normal" without severe pain and D.  

 

 I am not even 40 and I have been on every allergy and asthma medicine known to man (some with severe reactions), depression medicine, prescription sleep medicine, arthritis medicine, bladder medication (since I was only 25), diflucan (I have a running RX for that for chronic yeast infections).  I get sinus infections at least 6 times a year, bronchitis, asthma attacks, yeast infections (on a regular basis), bladder infections, missed up periods (so much so that I had to have my uterine lining removed at 34), leg pain, back pain (pinched nerve was the diagnosis), shoulder pain (soft muscle damage was the diagnosis), chronic D (almost immediately after eating),  I can't sleep, but am always dragging.  I always feel like I am under the weather.  I've been through multiple CT scans, MRIs, ultrasounds (regular and transvaginal), etc and they can never find any reason for my problems so they just give me another medication.  If I took all the medicine I am supposed to, I would be on 9 different pills a day (not counting when I am on antibiotics- which most of those I break out in hives).  The last time I had a sinus infection, I was on antibiotics for over 4 weeks trying to get rid of it, plus predisone (which I hate).   

 

I just want answers and feel good.  I don't know what is like to feel good.  This has been going on all my life and I just can't take it anymore.  Could gluten be at the bottom of all my problems?  And if so, why haven't I ever been told that this could be a problem?  

 

* Forgot to mention, I have psorasis (topical ointment for that).  I also had carpal tunnel surgery on both of my hands this past Spring.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi MChase.  It is always possible that gluten may be an issue for you.  You said your Dr. Mentioned Celiac.  Are you going to be tested? So many times people go years with a bunch of diagnoses except the correct one.  I would definitely pursue testing for celiac.  You need to continue eating gluten for an accurate test.

 

Hope you get some answers. 

 

Colleen 

MChase Apprentice
MChase
Posted
  • Author

Hi MChase.  It is always possible that gluten may be an issue for you.  You said your Dr. Mentioned Celiac.  Are you going to be tested? So many times people go years with a bunch of diagnoses except the correct one.  I would definitely pursue testing for celiac.  You need to continue eating gluten for an accurate test.

 

Hope you get some answers. 

 

Colleen 

Thank you Colleen.  Yes, I am going to be tested for Celiac and for UC.  I go for my consultation with a GI next week.  In the meantime, I am trying to eat "normal" even though I pay for it.  

eers03 Explorer
eers03
Posted

I would want a liver panel, and a celiac panel.  Go from there.  Keep eating normal food (including gluten) or it can skew your results (giving you a false negative.)  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.