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kerri124

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kerri124 Apprentice

I was just diagnosed with Celiac 2 days ago. Now that the inital shock has worn off I have been doing some research online and I found this message board. I just wanted to introduce myself. I'm Kerri 29 and I beleive that I've had Celiac for at least 7 years if not longer. I have ALOT of symptoms including recurrent miscarriages. I've had 4 in all. My dr has put me on a detox program and of course the diet. I just wanted to ask you all how long it takes before you feel better?? Now that I know what I'm dealing with I'm anxious to feel better!! I have been to many many drs through the years all of which could not find the problem so they said it was "all in my head" I am sure you guys have been through all that before as well. I look forward to getting to know everyone soon! :)


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kerri124 Apprentice

My name is Kerri and I've just been diagnosed with Celiac 2 days ago. I believe I've had this disease for the last 6-7 years. I've been to many many drs before only to be told that "it was all in my head." I'm sure many of you had the same problem. They now believe that this was the cause of my 4 miscarriages. I just have a quick question. Once you started the gluten-free diet how long did it take you to feel better? I look forward to getting to know you all soon. Thanks.

travelthomas Apprentice

Hi Kerri,

It does seem to take a bit of time. I'm starting to feel really good after about one and a half years. I do have to mention that there were quite a few accidents with gluten. Now I just cook all my own food in my own space, and cook from raw food. The only processed food I eat is canned salmon from Thailand (Chicken of the Sea). I figure the Thai people do not even eat gluten lunches in the salmon factory.

I think the biggest trick is to find a diet that works for you. I can eat fish, brown rice, chicken, and vegetables. That's about it. I gave up drinking anything but water. I know it sounds a bit extreme, but it works for me. I'll do whatever it takes to feel good. B)

Good luck with your gluten free diet. :D

Laura Apprentice

Hi Kerry,

Welcome here.

It seems like people have widely varying times before they start feeling better. That partly depends how much damage had been done before they were diagnosed, but also it seems to vary for other reasons that are less clear. It's hard for me to know how quickly I felt better, since my symptoms weren't totally clear-cut so I didn't know they had been symptoms until they were gone for a while. I bet that going gluten-free with really help you not miscarry again. One of the very first changes I noticed when I did it was that I went from getting my period only every two or three months to being close to regular, so it can definitely have an effect on fertility issues.

I feel like cheering every time someone comes here having finally gotten diagnosed as celiac. Not because it's such a picnic giving up gluten, but because their lives are going to improve so much. Maybe not right away, but sooner or later it is going to make such a difference to your health.

(Oh, and I eat more things than travelthomas. I still cook for myself most of the time, and it's hard to eat out a lot of places, but I have lots of foods I can eat. Definitely read the food and recipes sections here, though.)

lauradawn Explorer

I have been gluten-free for 3 weeks now, and I am already starting to notice some improvements.... granted I have a long way to go, but I see improvements already!!

celiacfreeman Contributor

TOTAL IMPROVEMENT in 3 months

my symptoms were

night blindness

fatique

skinny

dark circle under eyes

anemia

ostepenia (this will take awhile to reverse)

waking 2 or 3 times a night to use facilities

hemoroids

gained 16 pounds in 3 months and feel like running a race.

Had sympton for a least 9 years

Lisa F

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    • Alibu
      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
    • trents
      That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
    • Scott Adams
      Welcome to the forum!  Do you mean that you eat food from fryers that also cook gluten items, and you don't have serious issues? If so, the problem with this approach is that, depending on how often you do this, you could be causing villi damage if you have celiac disease (you haven't mentioned whether or not you have celiac disease), which can lead to more serious issues later.
    • Hummer01
      Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha.  Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and confusing.  I guess the only thing about not getting the "official" diagnosis is not knowing how strict to be with CC (in my early 20s trying to think about the long term effects) but I hope starting the diet will bring some relief either way. Thanks again. 
    • Scott Adams
      Thanks for sharing that. For what it's worth, a majority of celiacs can eat such products without villi damage--which has been documented in many studies that you can read here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/ But super sensitive celiacs should definitely avoid it.
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