Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New


kerri124

Recommended Posts

kerri124 Apprentice

I was just diagnosed with Celiac 2 days ago. Now that the inital shock has worn off I have been doing some research online and I found this message board. I just wanted to introduce myself. I'm Kerri 29 and I beleive that I've had Celiac for at least 7 years if not longer. I have ALOT of symptoms including recurrent miscarriages. I've had 4 in all. My dr has put me on a detox program and of course the diet. I just wanted to ask you all how long it takes before you feel better?? Now that I know what I'm dealing with I'm anxious to feel better!! I have been to many many drs through the years all of which could not find the problem so they said it was "all in my head" I am sure you guys have been through all that before as well. I look forward to getting to know everyone soon! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kerri124 Apprentice

My name is Kerri and I've just been diagnosed with Celiac 2 days ago. I believe I've had this disease for the last 6-7 years. I've been to many many drs before only to be told that "it was all in my head." I'm sure many of you had the same problem. They now believe that this was the cause of my 4 miscarriages. I just have a quick question. Once you started the gluten-free diet how long did it take you to feel better? I look forward to getting to know you all soon. Thanks.

travelthomas Apprentice

Hi Kerri,

It does seem to take a bit of time. I'm starting to feel really good after about one and a half years. I do have to mention that there were quite a few accidents with gluten. Now I just cook all my own food in my own space, and cook from raw food. The only processed food I eat is canned salmon from Thailand (Chicken of the Sea). I figure the Thai people do not even eat gluten lunches in the salmon factory.

I think the biggest trick is to find a diet that works for you. I can eat fish, brown rice, chicken, and vegetables. That's about it. I gave up drinking anything but water. I know it sounds a bit extreme, but it works for me. I'll do whatever it takes to feel good. B)

Good luck with your gluten free diet. :D

Laura Apprentice

Hi Kerry,

Welcome here.

It seems like people have widely varying times before they start feeling better. That partly depends how much damage had been done before they were diagnosed, but also it seems to vary for other reasons that are less clear. It's hard for me to know how quickly I felt better, since my symptoms weren't totally clear-cut so I didn't know they had been symptoms until they were gone for a while. I bet that going gluten-free with really help you not miscarry again. One of the very first changes I noticed when I did it was that I went from getting my period only every two or three months to being close to regular, so it can definitely have an effect on fertility issues.

I feel like cheering every time someone comes here having finally gotten diagnosed as celiac. Not because it's such a picnic giving up gluten, but because their lives are going to improve so much. Maybe not right away, but sooner or later it is going to make such a difference to your health.

(Oh, and I eat more things than travelthomas. I still cook for myself most of the time, and it's hard to eat out a lot of places, but I have lots of foods I can eat. Definitely read the food and recipes sections here, though.)

lauradawn Explorer

I have been gluten-free for 3 weeks now, and I am already starting to notice some improvements.... granted I have a long way to go, but I see improvements already!!

celiacfreeman Contributor

TOTAL IMPROVEMENT in 3 months

my symptoms were

night blindness

fatique

skinny

dark circle under eyes

anemia

ostepenia (this will take awhile to reverse)

waking 2 or 3 times a night to use facilities

hemoroids

gained 16 pounds in 3 months and feel like running a race.

Had sympton for a least 9 years

Lisa F

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.