Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long On A Wheat Free Diet?


poppet

Recommended Posts

poppet Rookie

Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?

Hope you can advise, love Poppet x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?

Hope you can advise, love Poppet x

<{POST_SNAPBACK}>

The healing rate depends on how long you were sick before dx, your own healing rate, total damage done before dx, and how strictly you are adhering to the gluten-free diet. Please note that wheat free doesn't mean gluten free! Rye products, barley (and items containing malt which is almost always made from barley) have gluten and must be avoided. And if you are stateside, oat products are severly cross contaminated here. And watch out for cross-contamination in the home, at restaurants and everywhere else. And also there is that pesky hidden gluten - items flavored with soy or terriyaki sauce almost always have wheat added. And check health and beauty aids also. Have you mastered the art of constant label reading? But the fact that you are now seeing improvement is good. By being totally gluten free you will regain your health and life. :)

Carriefaith Enthusiast
Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?
Have you been diagnosed or tested for celiac disease?
VydorScope Proficient
The healing rate depends on how long you were sick before dx, your own healing rate, total damage done before dx, and how strictly you are adhering to the gluten-free diet.  Please note that wheat free doesn't mean gluten free!  Rye products, barley (and items containing malt which is almost always made from barley) have gluten and must be avoided.  And if you are stateside, oat products are severly cross contaminated here.  And watch out for cross-contamination in the home, at restaurants and everywhere else.  And also there is that pesky hidden gluten - items flavored with soy or terriyaki sauce almost always have wheat added.  And check health and beauty aids also.  Have you mastered the art of constant label reading?  But the fact that you are now seeing improvement is good.  By being totally gluten free you will regain your health and life. :)

<{POST_SNAPBACK}>

Inaddtion, You might find this list helpfull...

https://www.celiac.com/st_prod.html?p_prodi...-16105308941.a7

Billygoat Apprentice
Hi there i was wondering how long it takes for you to feel 100% better after you start the wheat free diet? i have been on it since March now 7 months and i am only just seing a proper improvement, can anyone help me on this i think i read somewhere it could take up to 2 years!! is this true?

Hope you can advise, love Poppet x

<{POST_SNAPBACK}>

Poppet,

I fear you are making the same mistake that I made. I thought wheat-free meant gluten-free. It does not. Gluten is in other grains, as someone else mentioned. It is also in other ingredients in foods that you don't typically associate grains with. I've been wheat-free for years. Couldn't figure out why I felt a little better, but would have days, sometimes months of feeling like before. It wasn't until this past summer that I went Gluten-free. Since then I've felt better than I have in ages. My biggest pitfalls were eating oats, spelt, and all the gluten in dressings, sauces, marinades, eating out, etc. You might consider doing a little more research, eliminating gluten (not just wheat) out of your system and see how you feel in a month or so. That's what it took for me. A good month going VERY Gluten-free and I felt like a new girl.

Good luck!

Andi

poppet Rookie

Hi there and thanks for your replies, i have yet to be diagnosed, my gp is on at the hospital for my results as the specialist refused to give them to me and i am on yearly appointments, he said i need to know for definate...

I have ulcerative colitis that wasnt changing despite being on heaps of meds, i came of the med after a year as they were making me bleed and then got told to go on this diet...

I have been on it since march, the specialist did a stool and blood tests in march but not got any results yet, i did see an improvement within 2 days with the toileting business and i had a couple of things with wheat/gluten in them and imediatly had terrible cramps like i had been puched in the tummy and then i needed the loo...

I dont even know what i should be looking for to see any improvements, but i have always had exema and spots and greasy skin and hair but this has inproved greatly the only real thing i am concerned about is my weight since march i have lost 5 stone i seem to have evened out now and i am stuck at 9 stone, does this normally happen??..

I have so many question and no answers, so sorry if i appear a bit thick or trying at times...

Poppet x x x

nettiebeads Apprentice
Hi there and thanks for your replies, i have yet to be diagnosed, my gp is on at the hospital for my results as the specialist refused to give them to me and i am on yearly appointments, he said i need to know for definate...

I have ulcerative colitis that wasnt changing despite being on heaps of meds, i came of the med after a year as they were making me bleed and then got told to go on this diet...

I have been on it since march, the specialist did a stool and blood tests in march but not got any results yet, i did see an improvement within 2 days with the toileting business and i had a couple of things with wheat/gluten in them and imediatly had terrible cramps like i had been puched in the tummy and then i needed the loo...

I dont even know what i should be looking for to see any improvements, but i have always had exema and spots and greasy skin and hair but this has inproved greatly the only real thing i am concerned about is my weight since march i have lost 5 stone i seem to have evened out now and i am stuck at 9 stone, does this normally happen??..

I have so many question and no answers, so sorry if i appear a bit thick or trying at times...

Poppet x x x

<{POST_SNAPBACK}>

How can you be thick or trying? We're here for each other. Celiac is a complicated disease with a very simple treatment. The gluten-free diet is very simple in principal, but hard at times to execute. And if medicos, dietitians and nutritionists don't understand it, how can we as lay people get our minds to grasp it? And since I'm from across the pond, what's a stone?

And since you've shown such a marked improvement on the gluten-free diet, that in itself would give you a dx - if not full blown celiac, then definitely gluten intolerant.

Keep on taking care of yourself.

Annette


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748

    Bob Madden
    Newest Member
    Bob Madden
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.