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Don't You Hate It When...


Greebo115

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Greebo115 Rookie

You get that familiar stomach pain, then the bloating.......and you start to feel tired and confused.....

and you know you ate only food made by yourself, from fresh ingredients......but you realise that you just touched paper bags with sandwiches and cakes in them and a "for certain" gluteny table top, then ate your safe "finger foods" without washing your hands....

 

Sitting here in pain, wondering if I just glutened myself, or if it is just possible that the symptoms I am feeling are from the fact that I forgot to take my digestive enzymes when I ate my home made nut/seed bars.

Time will tell.

Woe is me. :-(

 

Oh, and edited to add: The irony of this is that is that this was at a meeting I had arranged with my brother, to tell him he should get tested for celiac - ROFLMAO


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mommy2krj Explorer

That stinks! And is very ironic. :)

 

Per chance....are you on Frugal Village?

Greebo115 Rookie

That stinks! And is very ironic. :)

 

Per chance....are you on Frugal Village?

No, I haven't heard of it......maybe I'll have a look now.....I've abandoned work for today, I can't think straight at all...

mommy2krj Explorer

No, I haven't heard of it......maybe I'll have a look now.....I've abandoned work for today, I can't think straight at all...

 

Huh. You have the same screen name (minus the numbers) and I've never seen it anywhere else. :)

Most of my days have been that way lately. Like thinking and doing just take too much effort. It does not bode well for my winter as it definitely gets worse in the winter. *sigh*

Greebo115 Rookie

Huh. You have the same screen name (minus the numbers) and I've never seen it anywhere else. :)

Most of my days have been that way lately. Like thinking and doing just take too much effort. It does not bode well for my winter as it definitely gets worse in the winter. *sigh*

 

Nope, not me. But I just had a look and it's my kind of thing, I am already VERY frugal......not much there that I don't already do, lol, but always eager to find something new.

Well, so far I'm so bloated I've had to change my clothes, pain is bad,  burst into tears when my hubby arrived home (no reason!), burnt the dinner and walked into the door frame - so, it's a glutening then. Doh!

 

Lesson learned - wash my hands before eating-every time.

mommy2krj Explorer

Oh dear! I hope you're feeling better soon! Like any one of those symptoms aren't bad enough on their own....but then to walk into the door frame along with it. Goodness.

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    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
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      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
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