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Worried I May Have Celiac Disease?

Adams

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Adams Newbie
Adams
Posted

Hi there, I'm already booking a doctors appointment for tomorrow regardless as I'd like to know what's up with me but I thought id ask some personal opinions on here aswell.

For the last couple of months I've been really fatigued and thought nothing of it just being tired from work etc but over the past couple of weeks I've been getting some strange symptoms. For as long as I've remembered I've always suffered from migraines, I've seen an eye specialist and I don't need glasses and no further tests was done but that was about 7/8 years ago and maybe not relevant but I thought I'd mention it.

I've been getting a numbing pain in my right leg which is also accompanied with an itching that I can't seem to relieve by itching it feels like it's under the skin. The numbing feels like my leg is going dead and it goes really weak.

My stomach is really bloated I almost look malnourished, this is all of the time. I know it's not weight gain I am 10st 13lb and 5ft 8" and have stayed at this weight for about 6 months I've lost about a stone in the past 12 months but none recently.

I have really bad wind, nothing special but it causes me quite a bit of pain.

I get an awful awful pain in the top of my back/under shoulder blades after eating/drinking , and this pain really hurts. If I manage to fall asleep with the pain I can wake up and still have it it's a real sharp pain.

I get a dull pain in my perineum "gooch", if I jump of a small wall for a example or sneeze to hard.

On Thursday I ate a ham and cheese sandwich, after I felt really sick and I'll I took a couple of ibuprofen and it helped for a few hours I came home from work and felt awful again had a little tea (pizza, potato wedges ) and was up all night spewing and dizzy. I haven't eaten properly since then, just small bits and plenty of fluid to keep me going but every time I eat it makes me feel awful and sick. My stomach churns and I can feel and hear it. I went to the toilet today and my stool was very pale and you could say slimy. It looked very organ like sorry to sound disgusting.

These symptoms may not all be related but that's all I can think of, does this sound like it could be celiac a or anything else anyone may know of? as I said I'm off to the doctors tomorrow so I should know soon enough but any reply would be greatly appreciated. Thank you

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iloathegluten Newbie
iloathegluten
Posted

Definitely possible! Worth looking into for sure. Your symptoms sound similar to a lot of mine.

 

Other GI conditions I can think of that might fit your symptoms would be:

--small bowel bacterial overgrowth - I was just diagnosed with this. Even if you aren't Celiac, it can cause extreme sensitivity to gluten, and most people with it do better gluten free.

--gallstones/gallbladder issues

--IBD - Crohn's or Ulcerative Colitis can cause many of the same symptoms Celiac does.

--the dreaded IBS diagnosis

--food allergy/food sensitivity to one or more foods

 

The tricky thing about GI symptoms is the symptoms overlap on most of the conditions out there, so you'll have to see a doctor to determine what exactly is causing your symptoms. Definitely talk to a doctor about it and if necessary be forceful about getting tested for Celiac Disease and other GI conditions, even and ESPECIALLY if the doctor doesn't want to run the tests. My symptoms were written off as IBS throughout high school and most of college. I'd hate to see this happen to someone else!

meathead Rookie
meathead
Posted

Yeah it does sounds like you could well be celiac or sensitive to gluten. I had pretty much all the symptoms you have described before going gluten free. The best thing you could do is go to the doctor and see what they say. Most doctors don't seem to be clued in when it comes to food allergies so if they don't help you should definitely try a gluten free diet and see how you feel after a couple of weeks. Be sure and let us know. 

 

Good luck (:

Adams Newbie
Adams
Posted
  • Author

Thanks for the replys, very informative and helped. Sometimes I feel a bit hypocondriac but I know there's something I can feel it. I'm at the doctors as I reply so as soon as I've been in ill update on what she said. Thank you!

Adams Newbie
Adams
Posted
  • Author

I spoke to the doctor explained everything and he perscribed me with some omeprazole it says it reduces your stomach acid and he said if the problems persist to go back in 2/3 days. Does anyone know if it was celiac would omeprazole help or many any difference? All I can do is take them and see how it goes. Will keep this updated on what happens. Thanks again !!

kareng Grand Master
kareng
Posted

I spoke to the doctor explained everything and he perscribed me with some omeprazole it says it reduces your stomach acid and he said if the problems persist to go back in 2/3 days. Does anyone know if it was celiac would omeprazole help or many any difference? All I can do is take them and see how it goes. Will keep this updated on what happens. Thanks again !!

 

 

Shouldn't make any difference with Celiac disease. Supposed to help with reflux/acid indigestion symptoms.  Not sure how that helps with fatigue and your other symptoms?  If this were me, I would go back and ask for some real help.  Maybe take someone with you to help you stay on track?  Write down your questions and problems and ask what he is doing about each one.

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      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
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    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
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