Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treating Celiac Related Anemia While Taking A Ppi - Prevacid


HavaneseMom

Recommended Posts

HavaneseMom Explorer

Hi Everyone,

 

I am wondering if anyone has had success treating their Celiac related Iron Deficiency Anemia while taking a Proton Pump Inhibitor such as Prilosec or Prevacid?

 

I am currently taking Prevacid for GERD and have been taking various PPI's for about 3 years now. I was just recently diagnosed with Celiac Disease and am hoping that as my body begins to heal that I will be able to stop taking PPI's completely, but I have only been gluten free for a few weeks and still have lots of GERD issues.

 

I also have moderate anemia and my doctor has recommended that I take either 325 mg of iron, or 65 mg of elemental iron, three times a day. Everything I have read says that PPI's reduce stomach acid and inhibit absorption of iron. My doctor kind of blew me off when I asked him about this and said we could test in a few months to see if I am absorbing the iron. I am wondering if iron supplements will even work in correcting the anemia while I am taking the PPI? I would dive right in and start taking them, but when I have taken iron supplements in the past it has made me very nauseous along with constipation. I'm not sure if I should put my body through taking such high doses of iron if it won't be absorbed anyway?

 

If anyone here has any experience with the situation I would so appreciate any advice or suggestions. The fatigue and brain fog the anemia is causing me is pretty extreme and I want to work at correcting it as quickly as possible.

 

For reference my iron blood test numbers are:

Ferritin: 2 , Iron: 11 , Iron Binding Capacity: 466 , Iron Saturation: 2 , Hemoglobin: 9.2 , Hematocrit: 30.7

They are all out of ideal range, but I don't think they are bad enough for IV iron.

 

Thanks in advance!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I had iron deficiency anemia.  My last ferritin check came back at 55 (started at 2).  Anemia was how I was diagnosed back at the end of March 2013 for celiac disease  My doc recommended iron taken twice a day.  I took a cautious approach.  I took nothing -- no supplements for a month.  Then I added in the iron taking only one a day with Vit. C at night prior to going to bed and started all the other supplements recommended on this forum for the various deficiencies I had.  That's it.  After another month I haphazardly began taking two (65 mg.) a day.  I'd reduce my dosage if I felt that it was causing constipation.  

 

I'm doing great now.  Back to running after a fractured vertebrae in June doing nothing!  (Get a bone scan!)  My hemoglobin is the best it's ever been (I also have Thalassemia another anemia that does not respond to iron).  I declined several blood transfusions by several doctors.  I decided to be patient.

 

Hopefully, you'll feel more relief in a few weeks and will be able to get off the GERD meds.  

 

Welcome to the board!

 

 

 

Think about slowly adding iron.  You won't absorb all, but at least a little.   Iron is a cheap supplement (esp. at Costco).  Add into your gluten-free diet, iron rich foods (like molasses, I ate it by the spoonful) and cook in cast iron.

HavaneseMom Explorer

I had iron deficiency anemia.  My last ferritin check came back at 55 (started at 2).  Anemia was how I was diagnosed back at the end of March 2013 for celiac disease  My doc recommended iron taken twice a day.  I took a cautious approach.  I took nothing -- no supplements for a month.  Then I added in the iron taking only one a day with Vit. C at night prior to going to bed and started all the other supplements recommended on this forum for the various deficiencies I had.  That's it.  After another month I haphazardly began taking two (65 mg.) a day.  I'd reduce my dosage if I felt that it was causing constipation.  

 

I'm doing great now.  Back to running after a fractured vertebrae in June doing nothing!  (Get a bone scan!)  My hemoglobin is the best it's ever been (I also have Thalassemia another anemia that does not respond to iron).  I declined several blood transfusions by several doctors.  I decided to be patient.

 

Hopefully, you'll feel more relief in a few weeks and will be able to get off the GERD meds.  

 

Welcome to the board!

 

 

 

Think about slowly adding iron.  You won't absorb all, but at least a little.   Iron is a cheap supplement (esp. at Costco).  Add into your gluten-free diet, iron rich foods (like molasses, I ate it by the spoonful) and cook in cast iron.

Thank you for the great advice cyclinglady!

My anemia was what led to my Celiac diagnosis also. I am more comfortable taking the cautious approach you suggested - and I will try to be patient too. I have been so tired for so long that I want to see instant results, but it sounds like that is not realistic.

I am glad to hear you are doing so great! It is very encouraging. I actually have a Bone Density Scan scheduled for tomorrow. My Vitamin D level came back at 19, so I guess they want to look in to that too. Hopefully all will go well.

I will try the molasses and cast iron too. 

Thanks Again!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,024
    • Most Online (within 30 mins)
      7,748

    Maus14
    Newest Member
    Maus14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.