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Newbie! - How Long Until I Feel Better?


Puckster

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Puckster Rookie

Hello,

I just found out I have celiac disease (through enterolab) and was wondering what I can expect in terms of feeling better? How long does it take? What's your experience with getting on the gluten-free diet?


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Mo92109 Apprentice

I THOUGHT I was being gluten-free for 6 months now and there is just something ELSE wrong with me, but as I manuver through this site (which has done so much for me already!) I am realizing that I am not being as careful as I need to be. I never thought about cross contamination (am not celiac disease, diagnosed intolerant) because I didn't think it was a big deal. Same with going out to eat... never asked about the dressing or just pulled the bread off my burger rather than ask for it bunless.

So, even though I have not answered your question (since I have no idea and am waiting too) - I am telling you that you really, really need to be careful. I am doing a total inventory of the products I use when I get home (yes, shampoo, detergent, etc. makes a difference, who knew?) and my fiancee can now buy his own bread and butter and make it himself.

Take care and good luck!!!

Rachel--24 Collaborator

It really depends on how careful you are (as the last post already mentioned) and how much damage was done. Everyone's healing time is different. You may find you also have other food sensitivities, which is common. Eating out is risky...there is always a chance of getting sick when you eat out...no matter how careful you try to be.

Carriefaith Enthusiast

Everyone is different, some feel better in a few weeks and others may takes several months to a few years. Personally, I didn't start to feel about 100% better until over a year on the diet.

julie5914 Contributor

I felt better almost immediately, but my symptoms came back because because I was still going out to eat and was still eating foods with "natural flavor" and "modified food starch" without contacting the manufacturer. Don't be in denial - you have to be extremely careful and it is best not to go out to eat until you have a few months of healing, and then bring those cards with you that the server can take back to the chef.

I now only go to places that know what I am talking about when I say gluten and can recommend something on their menu that is already gluten free. If people I am with insist on going somewhere else, I think from here on out I will just get a drink and enjoy their company. It's not worth it.

Guest nini

you can start to feel better within a few weeks to several months, but it may take years to be completely better. I guess I really started feeling better about 6 month into the gluten-free diet, and now 2 1/2 years later I am a lot better than I was, but still not feeling 100%. You have to be so careful to not get any gluten at all because even the tiniest molecule can set you back. Over the summer we went to the Tennessee Aquarium and ate at Chili's while we were there, I'm sure my meal was cross contaminated even though the wait staff was extremely careful. They couldn't guarantee that my meal was completely gluten-free.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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