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Question About Celiac Testing

kdz773

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kdz773 Newbie
kdz773
Posted

Hi I am new to this website. I have a question and was wanting some feedback. I recently went on a gluten free diet for two weeks. I hadn't gotten tested but put a correlation together with my symptoms and the food I was eating. My symptoms are itching or burning in mouth and throat with in seconds, headaches, head feeling in a fog, feeling almost like I am high after eating gluten, heart palpitations, bad stomach pain, bloating w gas. I have IBS so i take 250 billion probiotic a day that helps with the diarrhea. I went to the dr and she wants me to be tested for celiac disease. While I was on the gluten free diet for 2 weeks most symptoms went away. I have to confess i wasn't 100% off gluten. Some days i ate stuff that i knew had gluten (at a work function) other days I ate stuff that had traces of gluten and than there was the times I ate stuff from restaurant started feeling really sick looked up on web and surprise surprise was loaded with gluten. So my question is do I wait to get tested or do I get tested now. I dont know if I can handle going back on 100% gluten diet again.

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kareng Grand Master
kareng
Posted

It is probably OK to test.  Maybe just make sure you eat some gluten for a couple of weeks first? You want to make sure you get the correct result.  The amount doesn't have to be much.  This link is for someone who has been gluten-free for a prolonged time.

 

https://www.celiac.com/forums/topic/105280-tested-negative-for-blood-test/#entry897266

 

"For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge."

WinterSong Community Regular
WinterSong
Posted

Just to clarify, you were not following the gluten free diet if you were eating that much gluten during those two weeks. You were basically "gluten-lite" - but it's good that you were feeling better! A nod in the right direction. It may be that you were eating enough gluten to get tested without realizing it. What did you eat that had traces of gluten? Anything like sauces or salad dressing?

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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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