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Doctor Unable To Explain, Please Help

dartmania2002

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Gemini Experienced
Gemini
Posted

It would be helpful to know if the elevated test was the tTg or the DGP?  I asked that question in my post previously and the answer makes a big difference as to what may be going on.  Again, if the doctor has not run the DGP and only the tTg, that is no indicator of dietary compliance.

 

Rashes are caused by many things and it could be from a contact allergy.  A good dermatologist could biopsy the area to tell if it is DH, so don't assume it is until you look into it further.

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dartmania2002 Newbie
dartmania2002
Posted
  • Author

My igA is high while my igG My doctor seamed surprised and said that he didn't understand why one was so high and the other so low. At this point he has me going for a breath test as well as checking the H.pylori again. I am also going for more bloodwork.... He appears as confused as me as to what in the world is going on here.

I also had him look at my skin for Dermatitis herpetiformis and he was unsure about that as well, but did write me a script for the Dapzone, but told me to refrain from using it until my Dermatologist gets back to me about my biopsy of the area.

anand Newbie
anand
Posted

Have u done a intestinal permeability test... U may want to do it and set a baseline for it also....

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      - trents replied to suek54's topic in Dermatitis Herpetiformis
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      Awaiting dermatitis herpetiformis confirmation following biopsy

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
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      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
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    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      Healthy Gluten Free Foods low sugar that you found?

      By xxnonamexx · Posted

      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
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