Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prescription Based Pancreatic Enzyme Recommendations


powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular

although I am still waiting to visually see the results, I got a call from the GI doctor's office the other day telling me my pancreatic elastase testing came back with abnormally low numbers indicating pancreatic insufficiency.  I am also malabsorbing neutral and total fats.

 

I keep seeing the prescription med Creon coming up in my searches, but are there any other prescription based enzymes that any of you have taken?  Also my doctor said these may or may not be covered by insurance.  Any experience with that?  Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

My son takes Pancreaze enzymes.  It is covered by my insurance, but I pay a co-pay of 25 dollars for 100 capsules.  My youth son takes 3 a day, 1 with each meal.  More information from the label.  It says pancrelipase.  Each capsule contains  lipase 4,200, amylase 17.500, protease 10,000 usp units.   They say they are Delayed-Release Capsules.  I looked them up on the internet before, so you can probably find more information there if you need it.

powerofpositivethinking Community Regular

that makes me very happy to hear your insurance covers it!  is this the one he takes?  Open Original Shared Link  does he notice a big difference with it?

 

 

My son takes Pancreaze enzymes.  It is covered by my insurance, but I pay a co-pay of 25 dollars for 100 capsules.  My youth son takes 3 a day, 1 with each meal.  More information from the label.  It says pancrelipase.  Each capsule contains  lipase 4,200, amylase 17.500, protease 10,000 usp units.   They say they are Delayed-Release Capsules.  I looked them up on the internet before, so you can probably find more information there if you need it.

lrmilas Rookie

It was so nice to see your post because I am in exactly the same place, except that I recently had some big lapses on my gluten free diet.  In the last few months I have lost 20 pounds, and feeling very shaky and weak. My GI doc also said I need pancreatic enzymes (Creon) for "pancreatic insufficiency"... but I am wondering if the pancreas will resume normally on a gluten-free diet.  It appears you have been gluten free for a year.  So... maybe these are not connected? 

1desperateladysaved Proficient

 It appears to be the same ingredient.  My son was about 9 when he began taking these enzymes with meals.  He had failed to grow at the expected rapid rate for his background.  We eventually did a stool test and discovered that his enzyme levels were very low.  Just after he began the enzymes I noted that his too small jaw began to increase at a surprising rate.  In fact when I pointed this out to the doctor, he showed his excitment about it.  My son  began to grow and put on more weight.  We came nearly to the end of his prescription and I stopped his taking it to see if we could get by  He felt no bloating or ill effects.  However, his growth and weight gain came nearly to a stand still.  We had him retested and discovered his enzyme level was zero!  He is back on them.

 

I noticed his sister had small jaw and teeth crowding.  I gave her some of my non-prescription enzymes.  She had teeth loose in her mouth that the dentist claimed would never fall out because her jaw was too small.  About 3 days later she lost one of these teeth and within 3 more days, she lost 3 of them.

 

I think enzymes work WHEN there is a need for them.  The doctor told me insurance will cover if there is a demonstrated need for them.  He considered the fact that my son began growing after starting them as reasonable proof.  The recent stool test (while not taking the enzymes) with 0 registering pancreatic enzymes could be used as a factor too.

 

The functional medicine nurse I see told me that in a damaged small intestine the villi damage can cause them to fail to do their job of telling the pancreas to fire.  The enzymes can help to break down the food while the villi heal.  For me (in celiac) that means that I may not need them forever.

 

The doctor that originally prescribed these for my son is trained in osteopathic and functional medicine.  I also remember my MD telling me to take enzymes when she diagnosed me.

 

This appears to be the exact product in my bottle.  Open Original Shared Link

powerofpositivethinking Community Regular

thank you!  the studies that I've read say the enzymes will help with growth and weight gain, but the weight gain is certainly something I do not need because I'm already slightly overweight  :lol:

 

 

 

 It appears to be the same ingredient.  My son was about 9 when he began taking these enzymes with meals.  He had failed to grow at the expected rapid rate for his background.  We eventually did a stool test and discovered that his enzyme levels were very low.  Just after he began the enzymes I noted that his too small jaw began to increase at a surprising rate.  In fact when I pointed this out to the doctor, he showed his excitment about it.  My son  began to grow and put on more weight.  We came nearly to the end of his prescription and I stopped his taking it to see if we could get by  He felt no bloating or ill effects.  However, his growth and weight gain came nearly to a stand still.  We had him retested and discovered his enzyme level was zero!  He is back on them.

 

I noticed his sister had small jaw and teeth crowding.  I gave her some of my non-prescription enzymes.  She had teeth loose in her mouth that the dentist claimed would never fall out because her jaw was too small.  About 3 days later she lost one of these teeth and within 3 more days, she lost 3 of them.

 

I think enzymes work WHEN there is a need for them.  The doctor told me insurance will cover if there is a demonstrated need for them.  He considered the fact that my son began growing after starting them as reasonable proof.  The recent stool test (while not taking the enzymes) with 0 registering pancreatic enzymes could be used as a factor too.

 

The functional medicine nurse I see told me that in a damaged small intestine the villi damage can cause them to fail to do their job of telling the pancreas to fire.  The enzymes can help to break down the food while the villi heal.  For me (in celiac) that means that I may not need them forever.

 

The doctor that originally prescribed these for my son is trained in osteopathic and functional medicine.  I also remember my MD telling me to take enzymes when she diagnosed me.

 

This appears to be the exact product in my bottle.  Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,507
    • Most Online (within 30 mins)
      7,748

    Teachermom
    Newest Member
    Teachermom
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.