Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Family

hmporter5

Recommended Posts

hmporter5 Newbie
hmporter5
Posted
I have hashimoto's and was confirmed celiac in January this year. Due to that I chose to  have my children tested as well. 
 
I just found out that 4 of my 5 children have celiac.
 
So now there are 5 of us with celiac. My 13 year old daughter and my husband are not. I think it is going to be easier to make it a gluten free kitchen and buy their food premade as that is cheaper. 
 
I would love tips and help on just about everything! LOL
 
Where do I go to take them to eat out that has kid friendly food? We don't eat out a lot, but once every few months we like to travel or go out. 
 
What about lunches that don't include gluten free bread? Any suggestions. 
 
Other issues:
17 dd - aspergers, celiac
15 dd - lupus, celliac
13 dd - nothing!
10 ds - adhd, celiac
6 ds - celliac
 
Thanks for any suggestions. I have been checking out the forums and have cereals figured out!
 
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Hello & welcome...

I guess  you can out   number  the gluten eaters in your  house  so  celiac  wins!!!!  You  don't  say  what  state  you are from   but  it  you would  mention  that it  would  help  in guiding  you to  friendly  restaurants & such....

There  is  a  learning  curve  when beginning  the  gluten-free  lifestyle.. I  don't  call  celiac a diet  because it is a  lifestyle  change.....

Have  you  read  about  getting  a new  toaster, changing  out  utensils, pots& pans  that  are  scratched  & have been used  for  wheat cooking? I  don't  want  to hash  it out  if  you are already  aware  of things like  that....

 

Plus  the  kids  who  are  school age  need to  eat  gluten-free  at  school too... Celiac  is  covered  under  a  section of  the  disability  act  which  means  the  school  has to provide  a  gluten-free  meal  for  a  celiac  student... We  never  trusted  cafeteria  workers  so  we  always  purchased  the gluten-free  food  ourselves  &  taught  them how to  prepare  it.. The  las  states  the  school  should  pay  but  we  never  cared  about  that  we just  want  the kids  to  eat  & be safe......

Clean out  your  kitchen  of  wheat  products   if  you are  going  gluten-free  100%......honestly once  you get  into  this  no one  will know the  difference.. gluten-free  foods  have  come  a long  way  &  many is  excellent...

For  your  elementary  kid , make  a  safe  box  of  gluten-free  goodies  for  his  /her  room. Make  cupcakes , cookies  & things  that  be  frozen  when  some one  has a  birthday party ... When  the  room has  parties   we  always  matched  what the other  wheat  kids  were  having so our  celiac  kid  never  felt  different  &  other kids  didn't  tease  or  bully them....

Some  good  snacks  are   gluten-free  pretzels,  gluten-free  trail  mix, popcorn,  snickers, corn  chips,  tootsie  rolls, M&M'S.... many more  choices

Find out  each  kids  favorite  food  items  & learn how  to make  them  or  purchase  so  they  will not  feel  like  they are  missing out  & decide  when  MOM  isn't  looking  cheat.....

Progesso  makes  many  varieties  of gluten-free  soup    become  a  label  reader........ with the new laws  in place  & more to come  many items  are  clearly  mark  as  gluten-free.......

All  meats,beef, chicken  , fish  are gluten-free  naturally just  don't  buy  any  with marinades, rubs,  coatings already  on  them....Same  with  fruits & veggies, in their  natural state they are gluten-free....

If  you know  of  foods  that  are  favorites  , list  them here  & we  can tell you how to prepare  them or  purchase....

Good BYE Gluten  , Udi's,  rudi"s  , canyon bakehouse,  whole  foods  are all  breads  that  are  good   just  to name  a few....

 

Dairy Queen, Red Robin, Chipotle 's, Five Guys,   Uno's Chicago Grill, Mitchell's  Fish House, PF Chang's , Wendy's,  Burger King, Chick-F-La , to name  a few   restaurants  but  there  are  hundreds  more....

hth  to get  you started.

Cara in Boston Enthusiast
Cara in Boston
Posted

In our house 2 have celiac and 2 do not.  I only cook gluten free (so my kitchen and all baking utensils are safe) but my older son and husband still eat gluten when they are out of the house.  The only "gluten" food we keep in the house is bread . . . in a separate bin and they have to make their sandwiches on a specific tray to catch all the crumbs.  Wait, they also have their own cereal too.  In specific plastic containers and they use red colored bowls when they eat it.  That way I know when I'm cleaning up or doing dishes that their bowl has gluten in it (so I use a different sponge)

 

We have 2 jars of peanut butter, 2 jars of jelly, etc. to keep ours crumb free.  I use colored sticky labels from Staples to mark which ones are gluten free.

 

Since I only cook gluten free, when we have pasta, we all have gluten free (we like Barilla).  

 

Other than that, our meals are usually naturally gluten free (grilled meat, roasted vegetables, rice, etc.)

 

We don't go out to eat much.  We have a few places local that are 100% gluten free.  We have tried a few chain-type places that claimed to have a gluten free menu but they didn't take enough precautions to prevent cross-contamination so it didn't really work out.  We have had great luck at California Pizza Kitchen.

 

Keep in mind that your non-celiac child should be tested every two years - even if you don't see any symptoms.

 

You might be surprised to find some of the Asperger's "habits" and even the ADHD are lessened after being gluten free.  That was our experience with my Asperger's child.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    2. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    3. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    5. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.