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Is It A Gluten Problem


sillyacting

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sillyacting Newbie

I have a long list of problems. Diarrhea, constipation, abdominal pain, fatigue, irritability, substantial weight loss, just to name a few. But my question is about my arms. They feel like they are on fire with pins and needles only when they get cold. Is this a celiac symptom?


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1desperateladysaved Proficient

From reading I certainly think this could be celiac.  How about having that tested?  The only things ya got to lose is some blood, and some horrible symptoms. 

 

Wishen you well as you begin your journey.  The diagnosis is the first hurdle, jump it!

 

I can't answer for myself about the pins and needles, so I will leave that one to someone else that had it.

 

Dee

trajana Newbie

I have a long list of problems. Diarrhea, constipation, abdominal pain, fatigue, irritability, substantial weight loss, just to name a few. But my question is about my arms. They feel like they are on fire with pins and needles only when they get cold. Is this a celiac symptom?

 

Check out info on Celiac or gluten + "peripheral neuropathy" and see if it sounds right.  I had a tingling/"asleep"/pin & needles sensation in my fingers pretty frequently before I cut out gluten.

sillyacting Newbie

I just got a gi appointment for june 4. I noticed yesterday that when my 4 year old went potty her stool was very pale and floated. Every symptom I have points me to celiac. I have four kids and fear at least one of them may have to fight this battle with me. Very scared

1desperateladysaved Proficient

You are on the right track learning about it.  It seems overwhelming now, but you'll make your way through it.  You will be very thankful when you feel better.  Hang in there through the start.  The rewards can be great.  Okay?

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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