Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Allergens, Like Corn, Re-Start The Dh Autoimmune Reaction ?

Blaze422

By Blaze422
in Dermatitis Herpetiformis

Recommended Posts

Blaze422 Rookie
Blaze422
Posted

I have been tapering off my dapsone and thinking I was getting better, but recently entered back into the world of

Itching. My idea of "healthy" is still have a rash on my lower back and neck hairline and sporadic patches on armpits etc...but 1/3 of what I used to have and .but significantly less itch..

I'm pretty confident that I have avoided gluten, but I remember many posts that discuss DH being a S.O.B....

And that sometime she raises her angry head because she can simply be a bi€th.

(A disclaimer is that I had some honey whisky that apparently has been rated a 4 out of 10 on confidence of being gluten free.)

So maybe I'm crazy, but I could swear that after drinking Arizona green tea that is proud of "no preservatives or artificial colors or flavor" I'm itching ...a lot. And my legs broke out.

Looking at the ingredients it appears to Have high fructose corn syrup . So in my over active paranoia, I'm wondering if my DH is "smoldering" and if corn can act similarly to iodine or salycylates and aggrevate my condition. So until I rule it out..I've eliminated corn as best I can.

Thanks for reading my rambling thought. Opinions appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Blaze, How many times did I ask myself if I was reacting to something that was not gluten? I finally learned not to second guess every single thing. How did I learn this? 1) Common sense  2) I reacted when there was absolutely nothing out of the ordinary that I had eaten.

Arizona Green Tea is gluten free, in fact ALL the Arizona teas are gluten free. 

 

To quote you:

"I remember many posts that discuss DH being a S.O.B....

And that sometime she raises her angry head because she can simply be a bi€th."

 

Yup, that's it.

 

9 full months after I had gone strict gluten-free & had improved so very much, I began to have a flare that got worse & worse & worse. It lasted from September through about May. It was the worst flare I had ever had. I did not get the tiniest amount of gluten. I have zero doubt about that. 

 

Relax. Stop torturing yourself. She's a b%$@# of the first order. The best thing you can do is to stop second guessing everything. Otherwise, she wins. And she's not going to win is she? 

Blaze422 Rookie
Blaze422
Posted
  • Author

LOL

So at the risk of being b%$@# slapped...

Are you saying foods that I have a sensitivity to will not cause a flare up?

squirmingitch Veteran
squirmingitch
Posted

I'm not saying that b/c I can't say that 100%. There is nothing I've read that would allow me to say such. I wasn't sensitive to any foods before dh reared it's ugly head (other than shroomies which I just don't eat). Therefore, I wasn't/don't eat any foods I'm sensitive to so can not say from my own experience that I did not flare when eating foods I am sensitive to. It's awfully hard to prove a negative. No food sensitivity so no way to compare. The question is...... were you sensitive to corn before?

kareng Grand Master
kareng
Posted

Maybe you have an allergy to these other foods that causes a rash?  Or adds a rash on top of the existing DH?  Now that sounds pleasant.....  :(

Blaze422 Rookie
Blaze422
Posted
  • Author

I am sensitive to corn (diarrhea )

The reason this all is on my mind because I'm seeing an environmental allergist next week out of desperation. He comes with a great reputation for being thorough and a great sleuth /detective type.

Quick recap : I never had any rashes until August 2014. Random stomach issue over the years and then slowly escalating rashes that were bilateral, reactive to iodine, not responsive to steroids.... but NOT insanely itchy.

Dermatologist agreed to try dapsone 25mg four times a day and I got 75% improvement in 4 months. Reduced dapsone to 25 mg twice a day and for 3 months have maintained status quo. Still have some rashes, some itchiness but manageable. Now in the last 3 weeks, things are flaring and spreading.

One thing I have been doing a lot past month or 2 is far infrared sauna and Epsom salt/baking powder/hydrogen peroxide baths .

Not sure if any of this is significant but thought I should increase dapsone again and see if I have a "hidden"

Allergen contributing to my pathetic state.

Thanks for any advice,

Mark

kareng Grand Master
kareng
Posted

So.... You don't really know if you have DH? It was never biopsied? Then, maybe it isn't DH and it something else.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Blaze422 Rookie
Blaze422
Posted
  • Author

My history is. Typical to most posters...they find this forum after they have struggled for months.

That's when we learn about the problems with a biopsy after steroids or blood work after going gluten-free. I have discussed my history on other threads and was trying to save everyone from a tedious story.

So yes, I was biopsied and had bloodwork that were not positive for DH. And no, I don't want to do a gluten test and have

GI biopsy.

And yes, that is why I freely admit that while it behaves and looks like DH, it may not be.

But the question is...if a person has DH and is gluten free....can other food allergens cause a flare up?

kareng Grand Master
kareng
Posted

I do not see a single mention that anything other than gluten causes DH on the U of C site.

Blaze422 Rookie
Blaze422
Posted
  • Author

I do not see a single mention that anything other than gluten causes DH on the U of C site.

Does iodine cause a DH rash to flare up?

Do salyclyates cause some DH sufferers trouble?

The question is not if corn causes DH ..but whether it can causes a DH rash flare up

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.