Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Else Experienced This Before?


glutenfreemomma188

Recommended Posts

glutenfreemomma188 Apprentice

Hey guys,

I wanted to see if anyone out there has has this issue. Ever since I got on my gluten free diet, I find myself having random zap sensations in the oddest of places on my body. It only lasts for a matter of seconds but is kinda freaking me out. I have gone to a doctor for this and they did a series of blood work on me and all of which came back good. I also had an MRI done and that came back good too. They want to do a nerve test on me to see if I have symptoms of m.s. However, I am thinking this might just all be because of Celiacs disease. When I went back unto gluten for a gluten challenge, I found that the zaps seemed to improve. Any idea what this could mean too?. My thought is that I am lacking in some area. However, I did have my levels for all of my vitamins etc. Checked and that was fine too. What do you think could be causing this and has anyone else experienced this?.

Thank you in advance.

Mrs. Anderson


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



user001 Contributor

I think there is a bit of detox symptoms related to cutting out gluten, im no expert its just something i have heard. How long has it been since your challenge?

glutenfreemomma188 Apprentice

A few weeks. However, when I was first put on the gluten free diet before full diagnosis from a biopsy, I was off of gluten for 17 months and still had it.

user001 Contributor

That is very strange. I have had strange skin sensations and those have improved greatly since going gluten-free. The bone pinches however have not, magnesium seems to help that. I would say that there must be something in the way of vitamins that they are missing. Some people have said there is nerve damage that can occur, i feel like that would explain something like that.

HavaneseMom Explorer

I used to occasionally get zap type shocks that would run from my shoulders up my neck before I went gluten free. I never asked a doctor about it, but thankfully it hasn't happened since I stopped eating gluten. It sound like yours improve when you do eat gluten though??? I'm not sure why that would be happening.

glutenfreemomma188 Apprentice

Ya, the only thing I can think I can think of that is causing it, is perhaps that my diet isn't as rich in nutrients and vitamins like a gluten filled meal. ??.

I do agree that it could be nerve damage.

When I was off gluten for the 17 months, I would get numbness in my feet and hands too, that is what actually caused me to make an appointment with the neurologist. But once again, when I went on the challenge, the numbness disappeared and the only change I made was ingesting gluten again. Could a lack of fiber cause this?

user001 Contributor

I developed some numbness/ circulation problems for the past month or so (after 4 months or so gluten-free) But it is already starting to improve i think.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,814
    • Most Online (within 30 mins)
      7,748

    JaneD
    Newest Member
    JaneD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.