Bingo

[Healthsohard]

It's it's been an interesting year to say the least.

My whole life I suffered symptoms of celiac and I'm just now realizing it might all be because of Celiac Disease.

I remember growing up and having crazy bouts of diarrhea at times, but thought it was a bug going around or just didn't sit right with my tummy. In my late teens/early twenties I started developing a rash. The rash would always be on my neck. I thought it was a heat rash and applied cortisone cream and washed with dove mild soap. The rash would come and go and it eventually started appearing on my arm once a year. The last rash was December 2014, and it appeared on my chest. Again, I chalked it up to heat rash. Washed with mild soap and applied cortisone. I've always had headaches and migraines. The diarrhea was still existing on and off. Other than that I felt ok. I'm a pretty active woman.

When I eat a meal, I get so bloated with a food baby. I look 3-4mths pregnant.

Just after my 32nd birthday in July 2014 I was slipped a drug in a club and overdosed. I was taken to the hospital. Ever since then I have not been the same. Seizures started September 2014. They've progressively have gotten worse. My neurologist thought I was having panic attacks and thought it was all in my head. I was put on clonazepam. After being filmed while seizing my new neuro says they're simple partial seizures. I have tingles in hands and feet a lot too.

Within the past month my diarrhea has gotten more frequent. Every few days I'm rushing to a toilet. Two days ago my diarrhea had blood in it.

I'm tired all the time and just feel drained. I never used to feel this way.

I scheduled an appointment for 8/22 with a gi doctor after a friend with celiac suggested I get tested.

What are your thoughts?

I read celiac disease can be triggered due to trauma.

I was also told not to go gluten-free till I've been confirmed Celiac or intolerant.

What test should I ask my dr about? My friend said biopsy but never mentioned any blood test.

[Healthsohard]

Also, even though I'm unsure if any family members have celiac, but both my mother and sister had infertility issues. My mom struggled to have kids for 8yrs. My sister had to do ivf treatments. My sister also has crazy mood swings and stomach issues.

[user001]

If you are having such severe problems, I would really suggest getting a sooner appointment with a general practicioner to have the simple blood test for celiac run. That way you can know sooner and stop having horrible symptoms. Your symptoms and the list of symptoms from your family members does sound like it might be celiac. I was able to link celiac to my dads mother who, later in life started avoiding gluten because it made her tired. She also had 2 miscarriages and a few strange illness that never had an explanation.

 

I don't know if the trauma trigger is factual but I have also read some similar information. To sum up what I have learned. It sounded like celiac disease can be in the background your whole life as kind of a nervous stomach but then a bad illness or traumatic event happens and after that a person with celiac starts to have symptoms full force. So not only did you have a nervous tummy, after the event or illness you are sick all the time, have no energy. You are just never the same.

 

I also had 'heat rash' alot as a kid, and a nervous tummy my whole life. Then when I was 16, I was sick for nearly an entire year with sinus infection, after sinus infection. After that year, my energy level was never the same and I just constantly felt sick. Over the past 14 years, I have been sick with many strange illnesses that were never explained to me. Just before I discovered I may have celiac disease, I had gotten so sick I was having anxiety attacks almost daily, I didn't want to leave the house. My balance was so horrible, I walked like a drunk. Then I discovered that I had celiac disease.

 

Like I said, I would try to get in sooner for the simple blood test. I don't know alot about the blood tests, im sure one of the moderators would have that information at hand. That would at least let you know what might be going on. I discontinued gluten before I had any testing done, the doctor didn't think it was safe for me to eat the stuff anymore because my health had declined so much. I was able to have results for blood and biopsy come up positive enough to make a diagnosis after being gluten free for a few months.

[Healthsohard]

Thank you user001. It's pretty insane how fast my health has deteriorated since the overdose.

Is there a certain blood panel to request or is it just basic blood work? I'll for sure try to get in with my primary care dr first for blood work. She recently did a basic panel but nothing came back alarming.

[user001]

You wouldn't believe how many 'basic' blood panels I have had, it's not standard to test for celiac disease. Diabetes, thyroid issues and lyme disease seem to be the generic things they test for. I think this is the link about testing. I know there is some good info on the university of chicago's website also.

https://www.celiac.com/articles/1108/1/Celiac-Disease-Screening/Page1.html

[Healthsohard]

Thank you very much