Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dermatitis Herpetiformis Treatments: What Do You Use?

CTMK3121

By CTMK3121
in Dermatitis Herpetiformis

Recommended Posts

CTMK3121 Newbie
CTMK3121
Posted

Hi everyone!  I am new to this forum as I just discovered I have DH.  I had been diagnosed with a severe case of Herpes Simplex 2 for about 5 years before my doctor performed extensive testing that showed I do NOT have HSV 2.  I had always loved my whole grains, thinking I was eating healthy; little did I know!!  Only a month into my gluten-free diet, I am still having DH symptoms.  I am trying Dapsone for the first time, so we will see how it goes.

 

The point of this post is to find out what treatment options work for the rashes and blisters, what you have found effective or ineffective.  I would really like to know how other people deal with this ailment in their day to day lives.  

 

I prefer to use aloe vera directly from the plant.  I have found this to be extremely effective in healing the rashes more quickly.  I also use an rX lidocaine (2.5%) cream which alleviates the itching and burning.  And rX steroid cream applied 2-3 times a day seems to help as well.  I take epsom salt baths and rinse my mouth out with salt water (I get DH orally) which burns but helps heal the lesions faster.  I am one of the unlucky ones who gets the rash in my buttock/genital area (sorry if TMI).   Using the lidocaine and steroid creams mixed with aloe really helps!  

 

Also, what do you guys tell people who ask about the rash?  Mine tends to resemble a burn in the early stages on my hands, so I just tell them I had a kitchen accident or something.  I wish people would mind their own business, but I realize that the rash looks horrible and people might think it is contagious.  

 

Thank you for replying to my post!  Bless you all  :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

https://www.celiac.com/forums/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/

 

I am not ashamed of my rash. I tell them the truth. You never know when you will be helping by making someone knowledgable about celiac disease & also about dh.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,770
    • Most Online (within 30 mins)
      7,748
    Darryl Renee
    Newest Member
    Darryl Renee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Ibuprofen

      By trents · Posted

      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
    • cristiana
      Ibuprofen

      By cristiana · Posted

      I seem to recall that my digestive issues actually started when I was taking NSAIDs c. February 2013 for some unrelated condition.  My stomach got so sore during that time I went to see my GP and she thought it might be an ulcer or gastritis so prescribed me Omeprazole.  That appeared to trigger diarrhea which, once I came off the Omeprazole, did not stop.  I went back to the doctors after a few weeks, and that finally led to my coeliac diagnosis, after months of unexplained neurological symptoms, low ferritin and anxiety,which did not seem to have a cause but of course we later realised was all down to coeliac disease. I occasionally take a very small aspirin for a sick migraine which sometimes only responds to aspirin, but it usually leaves me with sore stomach a few days later. I've been told co-codamol is another medication I could take with a sensitive stomach. I was once prescribed it, to use for just a few days. It is not an NSAID, but it contains codeine, which I understand can be addictive so should be used with care.  It can also cause constipation.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.