Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can It Be Celiac?

Misscellany

Recommended Posts

Misscellany Rookie
Misscellany
Posted

I was diagnosed with Sjogren's syndrome earlier this year, after running several blood tests to figure out a back issue. I was positive for SS-b, ANA and ENA. 

 

I've been feeling pretty good the last few months, except for the extreme fatigue. I've recently connected it with eating. No matter how much or what I eat I feel like I've been hit by a truck RIGHT AFTER I eat. Only if it's just a bell pepper, I get fatigued. I started Googling food fatigue, and came across Celiac and so many things fit with me.

 

I moved to the States from Norway when I was 20 years old and I'm currently 33 years old. Ever since I moved over, my stomach has had a hard time adjusting (or that's what I thought), giving me diarrhea and extreme bloating. The diarrhea was so bad I was worried about eating out, especially at Italian restaurants, because I was afraid I wouldn't be able to make it to a toilet in time. Most of the time I looked like I was 7 months pregnant, and I am underweight if you consider the BMI standard at 18.2. 

 

I got pregnant when I was 30 and the diarrhea suddenly stopped. Then I had a miscarriage at 10 weeks...  This entire spring I have had few bowel movements (was up to 12 days in between), but it didn't cause me any discomfort or bloating for some reason. 

 

I have RLS that I manage by taking 1000 mg Magnesium. I've also has twitching eyelids since November which could be caused by another deficiency. Every single day my eyelids are twitching, even in my sleep. This winter, the twitching would spread throughout my muscles, but it seems to have set on my eyelids now.

 

I've had fatigue for as long as I can remember. I also have unexplained rashes. I have brain fog all the time. Symptoms that I do not have that seems to be common are headaches and depression. 

 

Even though I have the blood for Sjogren's, I measured within normal range for the lip biopsy and Schirmer's test. I've also had a low WBC since November, when I did my first blood test.

 

Here's some of the blood result I've had over the last year, I don't even know if any of these can point to Celiac, but please let me know if something looks familiar:

 

ccc.webp

 

 

bb.webp

 

aa.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SMRI Collaborator
SMRI
Posted

I'm surprised they didn't run the Celiac panel.  Your IgA level is really low so the blood test for that won't come back accurate. Your IgG levels are ok so that might show something.  I would request an endoscope too.  Did you actually got to Mayo for your testing or did they just send the test to Mayo?  I was at Mayo on 6/20 as well so we may have crossed paths!!

Misscellany Rookie
Misscellany
Posted
  • Author

I was at the NIH for Sjogren's screening, that's probably why they didn't care about Celiac testing. I haven't been back to a doctor after getting these results back but I guess I should. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.