Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sacroiliac Pain Referring To Front - Lower Abdomen/pelvis?

cristiana

By cristiana
in Related Issues & Disorders

Recommended Posts

cristiana Veteran
cristiana
Posted

Hi everyone

 

Has anyone had sacroiliac pain (I gather SI problems are quite common in celiacs) that has referred to the front of the body?  I have inflammation in that left joint  but have had pain in my left groin and also, a weird sort of itch/soreness kind of midway between my left hip and my tummy button that never troubles me at night but does seem to be brought on by movement in the day.  Occasionally the pain is also in my hip and the joint feels on fire (worse if I have been on a long walk on uneven ground).  I have had a scan and they ruled out women's issues.   So what is left is either I have a problem with the intestines or SI trouble.  My chiropractor thinks that it is muscular skeletal and it is my SI joint.  Certainly, if I press down on the affected area it seems to wrap round to the joint.  Has anyone else had this problem?  I don't know whether to bring an appointment forward with my gastro consultant but I think my chiropractor might be right, as everything in the bathroom department seems to be OK!

 

Many thanks.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi everyone

 

Has anyone had sacroiliac pain (I gather SI problems are quite common in celiacs) that has referred to the front of the body?  I have inflammation in that left joint  but have had pain in my left groin and also, a weird sort of itch/soreness kind of midway between my left hip and my tummy button that never troubles me at night but does seem to be brought on by movement in the day.  Occasionally the pain is also in my hip and the joint feels on fire (worse if I have been on a long walk on uneven ground).  I have had a scan and they ruled out women's issues.   So what is left is either I have a problem with the intestines or SI trouble.  My chiropractor thinks that it is muscular skeletal and it is my SI joint.  Certainly, if I press down on the affected area it seems to wrap round to the joint.  Has anyone else had this problem?  I don't know whether to bring an appointment forward with my gastro consultant but I think my chiropractor might be right, as everything in the bathroom department seems to be OK!

 

Many thanks.

Hi Cristiana,

 

There is a muscle called the peri-formis, it wraps from the SI in the low middle of the back around to the hips (you can tell if it's this muscle by pressing at the top portion of your butt).  This muscle will typically become inflamed with Sacroiliitis.  This can also effect the bursa sacks in the hips and is called bursitis.  It all boils down to inflammation in the body.  

 

I don't recall your history ie: celiac?, being tested?.  I can tell you I had all three of those and more going on before going gluten-free.  All three of those issues and more inflammation problems successfully resolved after healing started.  To manage pain from the SI, Peri-Formis and Bursa I had many, many cortisone shots in my back and hips.

 

I have in the past also looked to Chiropractors for help with pain but in all honesty, this is an inflammation problem.  When one of my AI Diseases flares, inflammation goes crazy.  I also took anti-inflammatories for quite some time but I worried about liver issues with that.  Baths, hot and cold packs are a couple things that can help for short term relief.  Otherwise, getting the inflammation controlled at the sourse is the answer.

 

Good Luck to you.

 

Colleen

cristiana Veteran
cristiana
Posted
  • Author

Thanks Colleen - I'm sorry, I need to sort out a signature.  I just tried but couldn't find out how.  Anyway, I have been gluten-free for a year since May 2013, I was diagnosed by biopsy and blood test a year ago - readings were through the roof.   Since diagnosis I have had all sorts of weird and wonderful symptoms but this sacroiliac pain predates diagnosis.   Prior to diagnosis it flared up from time to time, normally because of carrying heavy loads (even too-big a handbag!)  At first it was very much the piriformis and bursa sacs area that was painful but now this added pain at the front, too.  The referred pain charts on line say that it can come to the front although I am not at all sure why that would be.  

 

Inflammation - I think I need to really try to sort this out.  I am quite sure I am not being glutened but I must admit to needing to try a more whole-food approach to my diet.  I do have a sweet tooth so maybe if I get rid of all the sugar from my diet that might help.  Does sugar cause inflammation?  I am sure I read that it did.

 

Thanks so much for your help.   

GF Lover Rising Star
GF Lover
Posted

Thanks Colleen - I'm sorry, I need to sort out a signature.  I just tried but couldn't find out how.  Anyway, I have been gluten-free for a year since May 2013, I was diagnosed by biopsy and blood test a year ago - readings were through the roof.   Since diagnosis I have had all sorts of weird and wonderful symptoms but this sacroiliac pain predates diagnosis.   Prior to diagnosis it flared up from time to time, normally because of carrying heavy loads (even too-big a handbag!)  At first it was very much the piriformis and bursa sacs area that was painful but now this added pain at the front, too.  The referred pain charts on line say that it can come to the front although I am not at all sure why that would be.  

 

Inflammation - I think I need to really try to sort this out.  I am quite sure I am not being glutened but I must admit to needing to try a more whole-food approach to my diet.  I do have a sweet tooth so maybe if I get rid of all the sugar from my diet that might help.  Does sugar cause inflammation?  I am sure I read that it did.

 

Thanks so much for your help.   

I think I know what kind of pain your talking about.  To me it feels like my lower intestines are inflamed or something.  Like an ache that will spike with certain movements.  I still get this when I have an autoimmune flare.  It seems separate from the bursa and back stuff.  The back stuff can still act up with prolonged standing, walking and lifting.  

 

I would suggest looking into an anti-inflammatory diet and anti-inflammatory foods.  (Google those)  Do you have any other AI Diseases aside from Celiac?  There are many of them and any one of them can cause inflammatory reactions.  I have a few of them, Hypothyroidism, Sjogrens, Reynaulds, Vitiligo, Connective Tissue, Celiac and who knows what else...lol.  I know when one AI Disease Flares, one or all of the others can flare also.  It can get really difficult to figure out what is what expecially if you have other health concerns.  I also have Cardiovascular issues and Cancer, I'm Bi-Polar and....you get the picture, it's hard to sort through whats going on at any given time frame.   You may have to start looking at other health issues going on.

 

I can also tell you that at almost three years gluten-free, I still have slow improvement of some of the more serious health consequences of being un-diagnosed for 15-20 years.  

 

I also think going to a mostly whole foods diet can help.  Processed food is really un-healthy.  I do watch watch my sugar intake but don't obsess about it.  If you can rule out any gluten getting in then you'll know if something else is going on.  

 

It takes tons of patience and investigation to figure out what's going on with our bodies.  Health and Happiness are everything to me so I do my best to try and keep those two things at the forefront of everyday living.  

 

Keep moving forward, don't fall into the " I can't do this or eat that" mode.  Get into the " I can " mode.  A positive attitude can do wonders :)

 

Colleen

cristiana Veteran
cristiana
Posted
  • Author

Hi gluten-free Lover... Thank you for a very comprehensive reply.  Yes, that is how the pain feels as you describe in the first para.  It also sometimes feels as if there is a paperclip there (or a staple) that is trapping something!  I could almost believe it was trapped wind at times.  Other times it's like a bee sting.  Then it is an itch.

 

A doctor once told me without any tests that I have Raynauds and I wouldn't be surprised if I am getting Sjorgens as I do suffer from dry eyes and I more increasingly a dry mouth.    I have had a heap of blood tests over the last two years and the only thing that was ever suspect was I was anemic and also had slightly raised gamma globulins which normalised after going gluten-free.   I guess I will pursue the healthy wholefood diet as best I can by way of a test before Christmas and see what happens.  

 

When you say you have other AI disorders, what causes them to flare?  If it isn't gluten as I imagine you follow the diet very carefully, what else can cause a flare?

 

I am sorry - I'll stop asking questions now!  

GF Lover Rising Star
GF Lover
Posted

Hi gluten-free Lover... Thank you for a very comprehensive reply.  Yes, that is how the pain feels as you describe in the first para.  It also sometimes feels as if there is a paperclip there (or a staple) that is trapping something!  I could almost believe it was trapped wind at times.  Other times it's like a bee sting.  Then it is an itch.

 

A doctor once told me without any tests that I have Raynauds and I wouldn't be surprised if I am getting Sjorgens as I do suffer from dry eyes and I more increasingly a dry mouth.    I have had a heap of blood tests over the last two years and the only thing that was ever suspect was I was anemic and also had slightly raised gamma globulins which normalised after going gluten-free.   I guess I will pursue the healthy wholefood diet as best I can by way of a test before Christmas and see what happens.  

 

When you say you have other AI disorders, what causes them to flare?  If it isn't gluten as I imagine you follow the diet very carefully, what else can cause a flare?

 

I am sorry - I'll stop asking questions now!  

Never stop asking questions :)

 

I can count on one hand the times I've been glutened so yes, I'm super careful and rarely eat out.  

 

For me, I get run down easily because I have a weak immune system..  I've always been one to gradually get sick but never reaching the height of the sickness.  I get all the symptoms but never full blown.  Stress can set it off, being very busy, strenuous work and a bug going around can all set it off.  Once I get run down my AI system flares.  It typically lasts for 3 weeks to a month.  I have had to learn how to adjust my lifestyle to avoid this but it still seems to happen all to often.  Any thing that stresses the immune system can cause it to flare up, gluten is only one aspect of it.  That's why it's so important to be as healthy as possible.  

 

These are my experiences and I continue to learn how my body behaves.  You will start to learn these things to.  

 

I know what you mean about the paperclip. my spot for that is in my left side between the top of my hip bone and belly button.  

 

For dry mouth I juse the Biotene Products including the mouth spray and I use lozenges also.  For the eyes, I use Refresh Products including the liquid gel drops and the gel at night.  I also use preservative free drops during the day.  

 

Do look into anti-infammatory foods.

 

Colleen

cristiana Veteran
cristiana
Posted
  • Author

gluten-free Lover - you have really cheered me up!  I have the paper clip feeling in the exact same place!   So it is not just me!  

 

I will ask my gastro consultant when I next seem him what is there on the anatomical chart?!   Thing is yesterday I had an elasticated waist on and that is where the pain was, today a skirt that doesn't put pressure in the same place and the pain is really just back in my SI region.  Odd.

 

Thank you so much.  I will look into the anti-inflammatory diet and find all the things I like on it and eat them. Your previous advice about being positive about what I can eat will help no end.  Thanks so much!

 

x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Your very welcome Christiana.  Good luck  :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.