Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Months Insomnia - Lunesta And Ambien Not Working...


JodyM75

Recommended Posts

JodyM75 Apprentice

So, I've got this wonderful thing going on where I can get to sleep fine, thank you very much, but I wake up in the middle of the night and I'm up.  Every. Night.  Doc originally put me on Ambien, which helped one night.  Then she switched me to Ambien extended release.  Same thing.

 

I've been taking Lunesta 3mg for 5 nights.  Worked the first night, waking up at 3am since then.

 

The fact that these meds aren't touching this problem really concerns me.  The docs seem concerned, too, but just keep switching me around.

 

I am also taking melatonin extended release.  Helps me get to sleep, but nothing much in the middle of the night.  I've even tried waiting unitl I wake up at 3 and taking it then, but it doesn't help me get back to sleep.  I also get outside in the sunlight every day for at least 15 minutes.

 

They also sent me to a local lung/sleep doctor, who taught me meditation/yoga breathing.  I already knew yoga breathing.  I did give it a try, though.  He wanted me to get up at 5 am and breath for an hour and 20 minutes every morning.  As much as I believe in preventative medicine and alternative therapies, I was resentful every time I did this and decided to stop.  And, frankly, I have a hard time justifying paying a specialist to teach me meditation breathing.

 

Three months of this is a long time, and I do recognize my stress and anger when I initially wake up is probably half the problem.  I don't know how to break this cycle, though. 

 

I have had this happen before, years ago, but it wasn't this bad and didn't go on for this long, but Tylenol PM helped then.  Does anyone have any suggestions? 

 

I should also note that I've decided to switch from my current PCP to an Internal Medicine office nearby, because I really don't like the "pat me on my little head and send me on my way" bedside manner of my current doc.  I haven't for a long time, but this last time really set me off.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



icelandgirl Proficient

That sounds awful... ((hugs)). I hate not being able to sleep.

A couple of things...what time are you going to sleep? If it's on the early side maybe moving it back an hour would help.

Have you had your thyroid checked? I had this happen to me recently when I went hyper. I'd go to sleep fine and then wake up between 3 and 4 and not be able to go back to sleep. It was driving me crazy.

I'm not sure what else to suggest. When I am unable to go back to sleep I will meditate and sometimes that does it.

I do hope you get some sleep...

bartfull Rising Star

So how long have you been gluten-free? I ask because I had terrible insomnia for years. (I know exactly what you mean about the stress and anger in the middle of the night!). After I had been gluten-free for a few weeks it got better. I still do wake up early (2 or 3 AM) sometimes, but not as often as before, and if I feel like I am too wide awake I just get up. I have the luxury of going back for a "nap" around 6 because I don't open my shop until 10.

 

Also, believe it or not, eating something can help. It's hard to sleep when you're hungry. Have a dish of ice cream or something and see if that helps. And if your hands and feet are cold that makes it hard to sleep too. Maybe a hot shower?

 

I'm also wondering what your age is and if it could have something to do with menopause.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748

    AnneSN
    Newest Member
    AnneSN
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.