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Am I Or Aren't I

RubyRose

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RubyRose Rookie
RubyRose
Posted

Hi Everyone.  I have been reading a lot and researching a lot, and I am 99% sure I have at the least an intolerance to Gluten, but  feel like it is most likely Celiac.  My blood work a year and a half ago were Neg. But I was only tested for one Antibody.  After researching I decided to take gluten out of my diet and all of my symptoms are gone! My Doctor was actually impressed that I had done this and felt I was on to something. She referred me to a gastro, but they cannot get me in until Feb.  UGH the waiting is killing me.  I am contiuing my gluten-free lifestyle as per the Gastros orders, but I was wondering if some of you could look at my symptoms list and let me know if they are consistent with Celiac.   

 

Headaches after Gluten consumption..sometimes leading to Migraine

Brain Fog,

Constipation followed sometimes by diarrhea, 

bloating,and hard abdomen

Pain just under rib cage and at waist band area on right side

TIRED and sleeping ALOT

Painful joints, stiff body, 

Nausea occasionally

Painful Periods with lots of clotting

Rash, But not sever, but does follow DH protocol, usually both sides fluid filled blisters, purple scars as they go away

weird feeling like I am wearing a wool sweater.

Craving Sugar all the time

Hungry all the time

 

All of these seemed to have gone away or lessened with The removal of Gluten.  This couldn't be a a coincidence, right?.  I would appreciate any help you could give me in deciphering my symptoms.   Thanks

 

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kareng Grand Master
kareng
Posted

Just a reminder - if you are expecting the GI to do an endoscopy to diagnose .celiac, you have to be eating a normal gluten diet.

nvsmom Community Regular
nvsmom
Posted

Those are symptoms of celiac disease, but they can also be symptoms of non-celiac gluten sensitivity (NCGS)... I'm not helpful, am I?  I'm glad you've got it narrowed down to one of two problems, and the treatment for both is the same so you know how you'll be moving forward in the long run.  ;)

 

When you see the GI, make sure he'll run all of the tests (ttG IgA and IgG, DGP IgA and IgG, EMA IgA, total serum IgA, and possibly the older AGA IgA and IgG if the DGP tests are not available).  It will be another 8-12 weeks of gluten consumption if you get the blood tests done.  Good luck!

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