Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs On Long Island,new York


BonLI

Recommended Posts

BonLI Newbie

Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



danikali Enthusiast
Hi!  I'm new to your site.  I'm looking for support groups in the NY metro area (preferably Long Island).  I'm a recently rediagnosed celiac.  I was about three when I first began living on bananas and rice.  I have lots of questions.  Anyone willing to help?

Thanks, BonLI

<{POST_SNAPBACK}>

I live in Manhattan, and I don't have any answers for you as I am just learning about this now and not done with the whole testing process yet. But I'm interested to know too, so I'm going to keep an eye on this post!

  • 4 weeks later...
Guest arnelwendy

I just came from the one at the west islip senior center ussually on the 1 st tuesday of the month except jan 90 higbie lane west islip

po box 13

kings park ny 11754 0013

very nice meeting

Suezboss Apprentice
I just came from the one at the west islip senior center ussually on the 1 st tuesday of the month except jan 90 higbie lane west islip

po box 13

kings park ny 11754 0013

very nice meeting

I'm on LI Too and looking for a support group... Is there contact information? I believe I was in contact with someone back in July, but then never heard back from them... ;)

eeyor-fan Contributor
Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

I'm just over the bridge from you in NJ. Just over the Arthur Kill. I know of a support group in East Brunswick, but I just stick with online groups...easier than being stuck in traffic, and made some great friends this way.

Hugs

Bridget

jkmunchkin Rising Star

I am in Westchester. I don't know of any groups in LI. I mainly stick to online but have found the Westchester Celiac Group holds a lot of events and may start to get involved with them. There is a meeting at Whole Foods tonight that I want to attend.

  • 4 months later...
fanny Apprentice

Hi, I'm from Queens NY and also new. Looking for support group in the tri state area or on line.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
laurieb119 Rookie
Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

HI,

JUST THOUGHT I WOULD OFFER A SUGGESTION. IF YOU GO TO MEETUPS, ON CELIAC. YOU WILL SEE A GROUP. I DO NOT KNOW THE ACTUAL WEBSITE. BUT I CAN FOWARD YOU AN EMAIL FROM THEM IF YOU WOULD LIKE. I HAVE NOT YET BEEN, B UT THEIR MEETINGS ARE MONTHLY AT DIFF RESTAURANTS. AND IT LOOKS LIKE IT MUST BE FUN.

ANYWAYS LET ME KNOW IF YOU NEED MORE INFO. IN ANY CASE I WOULD LOVE TO BE IN TOUCH WITH MORE CELIACS AS WELL. I FEEL LIKE A LONER, NOONE IN MY FAMILY BUT MYSELF, AND IT IS SO REPETITIVE TELLING PEOPLE WHAT CELIAC IS, AS I AM SURE YOU CAN RELATE.

BE WELL, LAURIE

darlindeb25 Collaborator

I am a member of the Suffolk County Celiac group--this is one of the coordinators of the group-- For More Information- Michael Thorn, Event Coordinator (631) 395-5071 or email pepi0912@aol.com for more information--I would put "celiac info please" in the subject line. The group does meet on Higbie Lane in West Islip--if I can be of any help, email me at darlindeb25@aol.com --------Deb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.