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Celiacs On Long Island,new York

BonLI

By BonLI
in Introduce Yourself / Share Stuff

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BonLI Newbie
BonLI
Posted

Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

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danikali Enthusiast
danikali
Posted
Hi!  I'm new to your site.  I'm looking for support groups in the NY metro area (preferably Long Island).  I'm a recently rediagnosed celiac.  I was about three when I first began living on bananas and rice.  I have lots of questions.  Anyone willing to help?

Thanks, BonLI

<{POST_SNAPBACK}>

I live in Manhattan, and I don't have any answers for you as I am just learning about this now and not done with the whole testing process yet. But I'm interested to know too, so I'm going to keep an eye on this post!

  • 4 weeks later...
Guest arnelwendy
Guest arnelwendy
Posted

I just came from the one at the west islip senior center ussually on the 1 st tuesday of the month except jan 90 higbie lane west islip

po box 13

kings park ny 11754 0013

very nice meeting

Suezboss Apprentice
Suezboss
Posted
I just came from the one at the west islip senior center ussually on the 1 st tuesday of the month except jan 90 higbie lane west islip

po box 13

kings park ny 11754 0013

very nice meeting

I'm on LI Too and looking for a support group... Is there contact information? I believe I was in contact with someone back in July, but then never heard back from them... ;)

eeyor-fan Contributor
eeyor-fan
Posted
Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

I'm just over the bridge from you in NJ. Just over the Arthur Kill. I know of a support group in East Brunswick, but I just stick with online groups...easier than being stuck in traffic, and made some great friends this way.

Hugs

Bridget

jkmunchkin Rising Star
jkmunchkin
Posted

I am in Westchester. I don't know of any groups in LI. I mainly stick to online but have found the Westchester Celiac Group holds a lot of events and may start to get involved with them. There is a meeting at Whole Foods tonight that I want to attend.

  • 4 months later...
fanny Apprentice
fanny
Posted

Hi, I'm from Queens NY and also new. Looking for support group in the tri state area or on line.

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  • 1 month later...
laurieb119 Rookie
laurieb119
Posted
Hi! I'm new to your site. I'm looking for support groups in the NY metro area (preferably Long Island). I'm a recently rediagnosed celiac. I was about three when I first began living on bananas and rice. I have lots of questions. Anyone willing to help?

Thanks, BonLI

HI,

JUST THOUGHT I WOULD OFFER A SUGGESTION. IF YOU GO TO MEETUPS, ON CELIAC. YOU WILL SEE A GROUP. I DO NOT KNOW THE ACTUAL WEBSITE. BUT I CAN FOWARD YOU AN EMAIL FROM THEM IF YOU WOULD LIKE. I HAVE NOT YET BEEN, B UT THEIR MEETINGS ARE MONTHLY AT DIFF RESTAURANTS. AND IT LOOKS LIKE IT MUST BE FUN.

ANYWAYS LET ME KNOW IF YOU NEED MORE INFO. IN ANY CASE I WOULD LOVE TO BE IN TOUCH WITH MORE CELIACS AS WELL. I FEEL LIKE A LONER, NOONE IN MY FAMILY BUT MYSELF, AND IT IS SO REPETITIVE TELLING PEOPLE WHAT CELIAC IS, AS I AM SURE YOU CAN RELATE.

BE WELL, LAURIE

darlindeb25 Collaborator
darlindeb25
Posted

I am a member of the Suffolk County Celiac group--this is one of the coordinators of the group-- For More Information- Michael Thorn, Event Coordinator (631) 395-5071 or email pepi0912@aol.com for more information--I would put "celiac info please" in the subject line. The group does meet on Higbie Lane in West Islip--if I can be of any help, email me at darlindeb25@aol.com --------Deb

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