Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


This topic is now archived and is closed to further replies.


Advice Needed Regarding My 10 Year Old Son.

Recommended Posts

Hi All,

I am very concerned about my son. I have always suspected a gluten issue but he has been tested negative 2 times now. Once when he was 5 and the last time around 6 months ago.
As he is 10 I don't often see his stool but a few times recently he didn't flush so his Dad and I both noticed his stool was very pale, fluffy looking and looked like there was lots of undigested food. I think this must be the way it is most of the time.
He is small for his age and I am concerned there might be a problem that is effecting his growth but at the same time the males in the family aren't too big so this might just be the way he is.
I am thinking he should go completely gluten free for 2 weeks to see if there is any improvement. Would this be long enough?
Is there another problem that might be causing this that any of you know of?
I want to have as mich information to take to the GP as possible as they are usually very good at fobbing me off!

Thanks in advance

Share this post

Link to post
Share on other sites

Join eNewsletter

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Welcome to the board.  I'm sorry your son hasn't been feeling well.


Only go gluten-free if you are satisfied that his testing is complete.  He must be eating gluten in the 2-3 months prior to (blood) testing for it to be accurate.  These are all of the celiac disease tests:

  • tTG igA and tTG IgG (tissue transglutaminase) - most common tests
  • DGP IgA and DGP IgG (deaminated gliadin peptides) - good for detecting early celiac disease , and for testing kids
  • EMA IGA (endomysial antibodies) - similar to the tTG iGA but detects more advanced disease
  • total serum IgA - a control test
  • AGA IgA and AGA IgG (anti-gliadin antibodies) - older and less reliable tests largely replaced by the DGP tests
  • endoscopic biopsy - 6+ samples taken

None of those tests are perfect.  It is quite common for celiacs to be positive in only one or two tests yet negative in the rest - including the biopsy.  Most tests have a sensitivity around 75-85% so some celiacs do get missed.  If you run all the tests, your chances of having accurate tests increases.


This report has more info on the tests:  http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

An article on how symptoms can't be relied upon in kids to diagnose celiac disease: http://pediatrics.aappublications.org/content/early/2014/01/07/peds.2012-3765.full.pdf


If you are satisfied testing is done, and is negative, then trying the gluten-free to check for non-celiac gluten intolerance (NCGI or NCGS) is a good idea.  You may need to give it more than two weeks though.  Generally, most people will notice a difference in post meal stomach aches and bloating within a few days, but other symptoms may take weeks or months to improve.  I was still noticing improvements at over one year gluten-free (but celiacs seem to recover a bit slower).  Keep a food and symptom journal to keep track of the changes.


Hypothyroidism can also affect digestion and slows growth. Check for TSH (should be about a 1), free T4 and free T3 (should be in the 50-75% range of the normal range), and TPO Ab.


Celiacs and those with NCGS can be low in nutrients that can affect his growth and life.  Check for levels of: A, D, B12, Ca, K, Mg, Fe, Zn, Cu, ferritin.


BTW, I am a celiac and I suspected a problem in a couple of my children.  They were tested but only with the TTG IgA (all that was available) and it was negative.  I made them gluten-free anyways and they improved quite a bit.  They have no dianosis of anything but they feel better... that's all that matters.


Best wishes.


"Acceptance is the key to happiness."

ITP - 1993

Celiac - June, 2012

Hypothyroid - August, 2012


Share this post

Link to post
Share on other sites

Join eNewsletter

Join eNewsletter