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New, Waiting On Blood Test Results

Syrena1022

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Syrena1022 Newbie
Syrena1022
Posted

Hello, I am new here and to the word "celiac" .... I had blood work done today I should have the results sometime tomorrow or wed. I am almost 100% that it will all be negative. Not 1 single person in my family has ever had this. My Aunt has had fibroymialga for years and that is what I was diagnosed with a little over a week ago. I have had this insane pain in my hips and back since I was 11 or so. I have had a huge list of issues all are pretty harmless and could just easily be passed off as a sometimes that happens type thing.

first off I am taking clavaris ( aka accutane ) im on my last month so, some dry itchy spots are not uncommon..... (i was also told that accutane can trigger this into full swing )

I have a rash ( i thought my dog gave me poison oak) its in full bloom here in sunny CA. but, after a weeks worth of prendisione it's not really better except, the patch around my eye. And , I also noticed it was inside my ear, and then I read about how DH  can be on your bottom ....I broke on my bottom weeks ago in what I thought was acne (but, it doesnt really itch) but, its not going away the bumps that heal leave purple marks and new ones pop up. and my ears the past few weeks feel hot, like they are burning. Then when I looked at the tiny insane itchy blisters with clear fluid a light went off.. last summer I had some on my foot. they itched like nothing I ever felt before. I thought I had athletes foot. They went away after a month or 2. but, only on 1 foot. 

What really made me question the gluten was the 5 days i was working on cutting it out. I did DRASTICALLY cut down and the first few days were awful.......then one day I woke up and felt very little back and hip pain....I felt great. So my doc ordered the test told me to keep eating it ...so, I did and holy cow......I felt like someone beat me with a bat and the tummy pain was awful!!!!!!

 

I guess I feel like I have been suffering for so long and no answers to anything....and it could be something as simple as gluten. I just don't feel like im that "lucky" (not that celiac is easy just , a simple blood test is) to figure it out. If it's negative (im sure it is)  I truly feel like I am going to suffer for the rest of my life with this pain. :unsure:  thanks for listing to me rant lol 

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squirmingitch Veteran
squirmingitch
Posted

IF you have dh (the celiac rash) you should be aware that 60% of the time the celiac blood panel returns a negative. Dermatitis Herpetiformis (dh) is best dx'd by a skin biopsy looking for dh. This is taken on CLEAR skin adjacent to a fresh lesion. You MUST be eating gluten until the testing is complete just like with the blood test. 

Also, when you get your bloods back -- post the results here along with the reference ranges. Many docs do not know to do all 6 of the tests in the celiac blood panel.

 

I saw another thread where you mentioned soy. Soy is safe for celiacs however many of us have problems with soy. i just wanted to make it clear that soy is not gluten.

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