Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intolerances


christa

Recommended Posts

christa Contributor

I've been reading alot on here and see that alot of other people have alot of other intolerances as weoo. Mine are yeast, anything starchy, rice, potatoes etc. Fructose so all fruit is out for me too, casein, nuts. I was just wondering if anyone has had significant improvements like haveing some of these intolerancees disappear after going on the gluten-free diet. If you did have improvements how long did it take.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest katzmeow21
I've been reading alot on here and see that alot of other people have alot of other intolerances as weoo.  Mine are yeast, anything starchy, rice, potatoes etc.  Fructose so all fruit is out for me too, casein, nuts.  I was just wondering if anyone has had significant improvements like haveing some of these intolerancees disappear after going on the gluten-free diet.  If you did have improvements how long did it take.

<{POST_SNAPBACK}>

HI

I've just been doing a little research. I have many of the same allergens you speak of.

Please get a book called "Breaking the vicious cycle" by Elaine Gottshall Last edition print 2004.

I think you will find it interesting to note how stuff truly breaks down in the digestive system and that possibly her diet may be an alternative for a while.

It makes such total sense to me. She suggests no potatoes, rice , anything starchy etc. because she says that anyone with intestinal issues from IBD to Celiac lacks the ability to break down dissacharides and that only monosacharides can be broken down by villi which are injured. I don't know if you are familiar with the above dissacharides and monosacharides. di means 2, mono means one.

She says that our blunted vili do not have the ability to do the last part of the job of breaking down the starch and sugar. She goes on to talk about a lot of things as well. Elaine had a child who had ulcerative colitis and Elaine was some kind of scientist and she foraged ahead and found all this knowledge.

If you go to study it online go to SBD diet (in your search engine) this will bring up a list , look for the healing crow web address and read the intro.

Also part of the reason for all of these food allergies is because we all have leaky gut syndrome. This needs to be addressed and healed and sometimes not only gluten free diets will conquer this. It needs to be done through rigid diet restrictions like no coffee, no sugar, no chocolate or any of your offending foods plus possibly a good probiotic am and pm. And do a rotation diet with the food so that you don't eat the same every day. Don't eat a lot at each meal. Chew very well so your tummy does not have to work so hard. It's not easy getting better

but the statistics are out there.

Of course the next question could be why have no doc's gotten this great info.

I think its coming forward slowly but nutrition and doctors has never taken top priority and been given a one shoe fits all approach.

Good luck and let me know if you read the book.

regards-mj

christa Contributor

thank you for your response. I did just get the book and would like to try the diet. I don't tink I can do the yogurt and I know I can't do vinegar so it makes the diet tougher because it is used in many reciepies, but I eat very plain now anyway so I am going to give it a shot starting tomorrow. Any one else on this diet? I need to improve on my will power as I still eat potato chips, plain andchocolate bars the odd time and I know I don't feel well after but I still do it. I need to make a commitment to getting well as I'm tired of feeling like s&%%^!

Bonnie Explorer

[Hi Christa,

I have been gluten free for 7 months now. I have intolerances to rice, sucrose, chocolate, nuts and seeds, etc. etc.

After 7 months I still can't tolerate rice at all. I have noticed over the last 4 weeks that my stomach is no longer swelling up like a balloon if I eat chocolate or sweets. In fact, in general my bloating has improved dramatically.

Everyone's healing time will be different and I don't know if all the intolerances will ever go away but things are definitely improving a little at a time.

Unfortunately this is a slow process and sometimes its so hard to be patient. As soon as they told me I had an intolerance to sucrose I went sweet mad. Never even used to have a sweet tooth now I'm like a monster who wants sweets and chocolate all the time!

I had a look at the diet you are going to try ages ago but its way too restrictive for me. However from what I have read, its an excellent diet. I also feel a lot better eating small meals and avoiding starches.

I am very happy with the improvements in my own health over the last months so I'm obviously doing something right! :)

Good luck!

Yvonne

kabowman Explorer

My intolerances have not gone away. I am now more sensitive than I was before. BUT, I feel so much better now that I know what to avoid and what was making me sick.

Vinegar has yeast in the process so if you cannot handle yeast that is most likely the problem. I discovered my vinegar problem then discovered my yeast problem and THEN I found out that vinegar is because of the yeast.

Avoid all condiments except for some Passover Kosher products. They all have vinegar!!!!

Some of the recipes that call for vinegar, like pie crusts, I add extra water. Others, I add lemon. I have created my own BBQ type sauce with lemon instead of vinegar and lots of sweet onion. Getting around the vinegar problem took me a while and sometimes I just have to move on without.

Tomatoes have a similar yeast in them so you may have problems with tomatoes too. I can eat them but not a lot and not too often. More than 2-3 times in a week and I have problems. In fact, I do best if I keep it down to 1 time per week.

I also avoid over-ripe fruit and dried fruit. I can eat sweets if I bake them then put them into the 'fridge immediately to keep the yeast from growing too fast. I know if I leave them out, like pies or sweet breads, after the 1st day, I have problems. I can eat them longer if they are put right in the 'fridge though.

kimjoy24 Apprentice
Any one else on this diet?

<{POST_SNAPBACK}>

I was on the SCD for almost a year and I agree about its effectiveness. It is very strict and time-consuming, but I noticed almost a complete turnaround of my digestive issues in just a week. I also discovered things I could tolerate just fine (like hard cheese) even though I've tested positive for a lactose/casein intolerance.

I didn't do the yogurt but make sure to take some acidophilus supplements to make up for it.

If you have nut allergies, it might be really difficult to stay on this diet- nuts are a primary snack and flour source on the SCD.

Good luck!

Guest katzmeow21
thank you for your response.  I did just get the book and would like to try the diet.  I don't tink I can do the yogurt and I know I can't do vinegar so it makes the diet tougher because it is used in many reciepies, but I eat very plain now anyway so I am going to give it a shot starting tomorrow.  Any one else on this diet?  I need to improve on my will power as I still eat potato chips, plain andchocolate bars the odd time  and I know I don't feel well after but I still do it.  I need to make a commitment to getting well as I'm tired of feeling like s&%%^!

<{POST_SNAPBACK}>

Hi again

boy that was quick getting the book.

Just another thought and this seems off the wall to most but one of my doc's swears by it for IGG allergies. It does not seem to work as well for long term IGE allergies which can take 2-3 days or more to show up. However I had blood testing done for all kinds of foods and since then have gone through and checked them against the blood work as this doc suggested and it is pretty amazing that if it is a stress to your body you will be able to tell from this test.

You need to sit down relax a bit (couple minutes take a relaxing breath) then take your pulse for one full minute. Then put some of the offending(allery food) in your mouth(you only need a little) and chew and move it around a bit and DO NOT SWALLOW it. After 30 seconds (with the food still in your mouth) take your pulse again. If the beat goes up more than 3 beats per minute it is probably more of a stress to your body and you should probably avoid it for a while. They say if you are an A blood type 2 3 beats per minute and O blood type more than 4 would be a stress. You can do this with any food. If your heart rate does not go up or down more than 2 beats between testing foods you do not need to redo the before pulse. But swish out your mouth with a little water between testing items. So before you sit down have a full glass of water, another to spit the test foods into, your watch with a minute hand and line up some of the foods. This is so you don't have to keep getting up or down which obviously will affect the heart rate.

This obviously works better on single foods like sugar, green bean etc... as if you do it with a cookie for something you may not know which ingredient is causing the problem. But you would know if it's stressing you. Again I stress that if you take away the offending foods for a while and then recheck once in a while there may be some of those foods you can re introduce at some point (but not every day of course and not in huge quantities.

The key is to heal the gut lining (the leaky gut) which really exacerbates any allergy and may even be the cause.

The above test is called the Coco pulse test. You can find info on line about it.

Good luck ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mart Contributor

Hi. How do you guys know what you're allergic (or intolerant) to? My son has celiac disease, and I've been trying to convince his gastro doctor to test him for other allergens as I suspect he may have a casein allergy. I heard this can also cause malabsorption, and although he has been gluten-free for 3 months now, he feels somewhat better but hasn't grown or gained much. Did any of you have a RAST test done to test for allergies? Which doctor did it (gastro or family practiioner) and how?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,661
    • Most Online (within 30 mins)
      7,748

    CarlaP
    Newest Member
    CarlaP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
    • Julie 911
      I finally got rhe answer and Tylenol is ok. Thanks everyone 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.