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Ocala, Florida Area

Stormtracker

By Stormtracker
in Doctors

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Stormtracker Newbie
Stormtracker
Posted

Hello, I am looking for a doctor in the Ocala/Dunnellon/Citrus Springs, Crystal River area that KNOWS about gluten intolerance. I am looking for a doctor that will take time to speak with me about the issues I am having. I know for a fact I am gluten intolerant. I have never been diagnosed, but I do know from an early age bread always made me so sick, cookies and cakes made me ill and I have the WORST pains all over my body when I eat anything with wheat in it. Bad depression, anxiety, low sugar, joint aches, bathroom issues, the whole nine yards.....most doctors want you to eat a gluten filled diet for about six months before they test you I simply CAN'T DO THAT. I'll get extremely sick. I need some other form of tests..........I am on Blue Select and hardly any good doctor actually takes this insurance. Any help would be greatly appreciated! Thanks....

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GF Lover Rising Star
GF Lover
Posted

Hi and Welcome To The Forum.

 

Unfortunately, Blood Tests and Endoscopic Biopsies are how they diagnose Celiac.  A gene test and symptoms can corroborate the results.  Both require a gluten challenge.  You can always decide not to have any tests and start a strict Gluten Free diet.

 

Colleen

Stormtracker Newbie
Stormtracker
Posted
  • Author

Hi and Welcome To The Forum.

 

Unfortunately, Blood Tests and Endoscopic Biopsies are how they diagnose Celiac.  A gene test and symptoms can corroborate the results.  Both require a gluten challenge.  You can always decide not to have any tests and start a strict Gluten Free diet.

 

Colleen

I just got back from the doctor and I am having a blood test tomorrow the usual bloodwork plus another blood test he said to test for Celiac. He seemed to really want to diagnose me with depression, I told him I don't have that and he tried and tried to get me to admit I was depressed. He didn't mention any gluten challenge and seemed like he wasn't worried about anything I was telling him concerning how I feel after I eat......

squirmingitch Veteran
squirmingitch
Posted

You have been gluten free so the test will come back negative & he'll say he was right BUT unless you have been doing a gluten challenge than of course the tests will come back negative. So he will feel all superior & vindicated but he's WRONG b/c he doesn't know what he's doing. 

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      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
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      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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