Need Help With Test Results..dq 2.2,2.5

[JustJean]

My 10 yo daughter has had stomach issues for over a year. I had her go gluten and dairy free, it helped, but not completely. I was referred to a GI doc who was willing to run lots of tests. She had been 99% gluten free for approx three months at the time of the test.

Deamidated Gliadin Abs, IgA - 4 (Negative 0-19)

Deamidated Gliadin Abs, IgG - 13 (Negative 0-19)

t-Transglutiminase (tTG) IgA - <2 (Negative 0-3)

t-Transglutimanse (tTG) IgG - 5 (Negative 0-5)

Endomysial Antibody IgA - Negative

Immunoglobulin A, Qn, Serum - 130 (range 62-236)

Genetic test results:

DQ2.2 and DQ2.5 trans

Also, thyroid panel:

Free T4 1.48

TSH 2.57

Her CBC blood panel was all normal.

The doctor recommended the FODMAP diet, but she still feels ill/slightly nauseous most of the time, especially in the morning.

Thank you for your help, any and all input is welcome.

[cyclinglady]

Being gluten free for three months makes the tests invalid! Experts in Celiac Disease recommend consuming gluten 8 to 12 weeks DAILY prior to any celiac blood testing. Here is a link to the University of Chicago's celiac website regarding testing:

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Here is a link to the British GI site. Again, it states that patients must be consuming gluten!

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And from the American Gastroentologists:

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I am so sorry that your daughter is suffering. I think you need to go back to the GI and ask why he/she did not follow the standard recommended celiac disease diagnosing criteria. Consider finding a celiac disease savvy GI and consider a gluten challenge. The challenge can be shorter 2 to 4 weeks prior to an endoscopy.