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Struggle Steet

webbooo

By webbooo
in Coping with Celiac Disease

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webbooo Rookie
webbooo
Posted

Hello, please excuse my rant and wing.

 

I have been Celiac for 5 months and while I have found my anxiety and mood has improved there are on occasions times when I’m really struggling with feeling weak and tied, especially in my arms and legs,  I’ve also lost a lot of weight although my stomach still looks full/fat.  The tied/weakness doesn’t happen all the time but does seem to be a lot, especially recently as well where it comes and goes.   My doctor did some blood tests a while ago and these all came back OK.  I did also see a Naturopath who suggested I eat get more carbs in my diet to help balance my sugar levels which I have tried to do.  I eat an almost full Paleo diet with healthy meals and portion sizes and I still found myself feeling rubbish and if I’m tied at work it’s hard to keep concentrated and productive.  I was originally diagnosed with Celiac disease about 4 months ago and I’m a 35 yr old male.  I don’t want to be super cautious about everything non gluten I eat and beating myself up.

 

I don’t drink alcohol, I don’t smoke,  I usually exercise but can’t with little energy and I eat a good portion of meat/fat so I’m not sure what’s going on.  I’ve done some searching which just leaves me feeling more confused but am just sick of feeling rubbish all the time, it really sucks, and this disease sucks.

 

Its also hard to find good help,  I’m thinking of going back to the doctor but I don’t think he really knows what to look for.

Has anyone else experienced these sorts of symptoms and found ways to overcome it?  I’ve tried being patient with myself but being active is hard.

 

Thanks

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smj7159 Newbie
smj7159
Posted

Hi webboo

I understand your frustration. I was diagnosed the day before last Thanksgiving. Most of what I've learned is from my on research. Has your doctor said anything about you taking vitamins and supplements? They made a difference in me. Because of the damage to small intestines, we don't get what our bodies need. I was found to be deficient in iron and B12. These are needed to make new red blood cells that carry oxygen. Lack of these can be what is making you feel tired all the time. Hope this helps.

etbtbfs Rookie
etbtbfs
Posted

Do you know whether gut dysbiosis set off Hashimoto's that whacked your thyroid? Very common. Unfortunately MDs aren't very good at diagnosis and treatment. Check out the web to see what Kent Holtorf, Mary Shomon, and Dana Trentini have to say.

smj7159 Newbie
smj7159
Posted

I hadn't had any symptoms related to Hashimoto's. All thyroid levels were normal for me, but iron and B12 were very low. I had an upper GI that showed damage to small intestine followed by Celiac serology to confirm Celiac Disease. Supplements have helped me a great deal. I have more energy than I've had in years.

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