Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Struggle Steet


webbooo

Recommended Posts

webbooo Rookie

Hello, please excuse my rant and wing.

 

I have been Celiac for 5 months and while I have found my anxiety and mood has improved there are on occasions times when I’m really struggling with feeling weak and tied, especially in my arms and legs,  I’ve also lost a lot of weight although my stomach still looks full/fat.  The tied/weakness doesn’t happen all the time but does seem to be a lot, especially recently as well where it comes and goes.   My doctor did some blood tests a while ago and these all came back OK.  I did also see a Naturopath who suggested I eat get more carbs in my diet to help balance my sugar levels which I have tried to do.  I eat an almost full Paleo diet with healthy meals and portion sizes and I still found myself feeling rubbish and if I’m tied at work it’s hard to keep concentrated and productive.  I was originally diagnosed with Celiac disease about 4 months ago and I’m a 35 yr old male.  I don’t want to be super cautious about everything non gluten I eat and beating myself up.

 

I don’t drink alcohol, I don’t smoke,  I usually exercise but can’t with little energy and I eat a good portion of meat/fat so I’m not sure what’s going on.  I’ve done some searching which just leaves me feeling more confused but am just sick of feeling rubbish all the time, it really sucks, and this disease sucks.

 

Its also hard to find good help,  I’m thinking of going back to the doctor but I don’t think he really knows what to look for.

Has anyone else experienced these sorts of symptoms and found ways to overcome it?  I’ve tried being patient with myself but being active is hard.

 

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smj7159 Newbie

Hi webboo

I understand your frustration. I was diagnosed the day before last Thanksgiving. Most of what I've learned is from my on research. Has your doctor said anything about you taking vitamins and supplements? They made a difference in me. Because of the damage to small intestines, we don't get what our bodies need. I was found to be deficient in iron and B12. These are needed to make new red blood cells that carry oxygen. Lack of these can be what is making you feel tired all the time. Hope this helps.

etbtbfs Rookie

Do you know whether gut dysbiosis set off Hashimoto's that whacked your thyroid? Very common. Unfortunately MDs aren't very good at diagnosis and treatment. Check out the web to see what Kent Holtorf, Mary Shomon, and Dana Trentini have to say.

smj7159 Newbie

I hadn't had any symptoms related to Hashimoto's. All thyroid levels were normal for me, but iron and B12 were very low. I had an upper GI that showed damage to small intestine followed by Celiac serology to confirm Celiac Disease. Supplements have helped me a great deal. I have more energy than I've had in years.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,482
    • Most Online (within 30 mins)
      7,748

    BLJones
    Newest Member
    BLJones
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.