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MommaBear

Opinions And Help Please

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Hi,

 

New to the board. I have been googling my symptoms and it brought me here. I have recently had blood work for Celiacs and all of my numbers came back in the normal range. However, I am at a loss on where to go from here. If anyone has any info that can lead me in the right direction I would be forever grateful. My currently symptoms are:

-Anemia & Vitamin D Deficient (am currently taking 50,000mg of D2).

-Have diarrhea with bouts of constipation. (tmi sorry)

-My stomach hurts after I eat, sometimes my mouth actually burns/tingles also.

-I have eaten bagels and gotten a large lump in my throat (like it was closing up) but most times its like I am out of breath.

-I get bloated after I eat.

-Wheat seems to get me more than anything else, but sometimes after I eat gluten thing free things I get a metal taste in my mouth. Also am lactose intolerant.

-I get really tired after I eat. (last week I had pasta for lunch and dinner, I literally became so tired I slept from Friday night to Sunday morning only waking up for about 5 hours on Sat). I have no energy at all.

-Cannot lose weight. I work out 6 days a week for months and am not losing any weight. I have remained at this weight for years.

 

That's all I can think of now. If anyone knows where I should look next I would appreciate the help.

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Hi MommaBear,

 

sorry that you are feeling this way. I really do not know nearly as much as some people on here and I am sure that they will give you a great advice. Inability to loose weight, vitamin D deficiency, feeling tired could be connected with thyroid. If I am not mistaken people with Hashimoto may feel this way. Look it up and see if your symptoms match and get tested. As I said, some incredible people on here will be able to help you better since they truly know more than some doctors.

 

Hope you feel better soon. 

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Exactly what celiac tests were given? Often just an IGA deficiency and a TTG iga screening tests are given. Some people (like me) test negative on the TTG tests. I only had one positive on the DGP IGA, yet I had moderate to severe intestinal damage based on my biopsies. Here is the complete panel:

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

Welcome to the forum!


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Thank you for your responses. They have tested my thyroid (twice) and my numbers were normal. For the blood tests my results were:

 

Immunoglbln M Serum 91 - 414 mg/dL 300 Gliadin IgA 0 - 19 units 6 Gliadin IgG 0 - 19 units 3 Transglutaminase IgA 0 - 3 U/mL <2 Tissue Transglut Ab 0 - 5 U/mL

<2

 

I am waiting for a referral to an allergist. If that doesn't help, I really don't know where else to turn.

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