Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting New Preschool


peppyking

Recommended Posts

peppyking Apprentice

My four year old is starting a new preschool. She was diagnosed with celiac disease last year (blood test & endoscopy), and her then-preschool was amazing.

 

This new preschool is run by the school district, but we pay for it. Would she be eligible for a 504 plan or not until she attends "regular" public school? If she is, what are the pros/cons and what should be included? They are a peanut free school, but I am nervous they will not take the gluten free seriously.

 

My daughter is very good about speaking up and avoiding cross-contamination. Any tips & suggestions for communicating with the teacher and fostering a safe classroom environment would be greatly appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



africanqueen99 Contributor

My 3 y/o attends a public school district preschool program.  Last year she was in the public school district Kids Morning Out.  I had a 504 filled out before she started KMO and then we updated at the end of the school year knowing she would bump up to preschool this year.

 

This is a quote from me from a thread a while back about the situation.  At this particular school they take all allergies seriously.  Truly, there was a kid with a latex allergy a few years ago and they removed ALL latex from the school.  They're that good - so I knew they would take gluten seriously.  And they do:

 

We met to put together her plan the Spring before she started KMO (she was 2.25 years at that time).  I had meetings with the upcoming teacher and aide, head of program, school nurse and Health Services Director for the district.  The Director of the building never attended anything - she had no need to.  Other than the Health Services Director (who puts together all 504s in the district), I had all the people I needed in the room.  We started off by them asking me what happens if she has gluten - I didn't sugar coat anything and might have embellished a little bit as I felt I was speaking for future kids with Celiac in the school too.  Then they literally asked me what I wanted and we discussed them point by point. 

* No food not from me or approved by me

* My kid is assisted with her food first and has a set spot at the head of the table (easier to not have other kids touch her food)

* All supplies were checked and safe from the school district person that does that (not sure of his title - but the man is a beast and gets to the bottom of all ingredients directly from manufacturers)

* Unrestricted bathroom acess

etc

 

All this to say that I'd have a sit-down with the people that really matter in this scenario - teachers/aids/nurse/etc.

racheltom Rookie

My daughter just started a new preschool, too, and they've been great about her celiac disease.  They are providing gluten free play doh, which I assumed I'd have to send in.  

 

I get a little confused when parents on these boards discuss 504s.  I'm an elementary school teacher, so I'm very familiar with the process.  I have never heard of students being on a 504 for celiac or any food allergy.  Is it common?  Just for early childhood?  

StephanieL Enthusiast

It's becoming more common for children to have 504's for Food Allergies and Celiac disease.  I won't say it is common yet but more and more it is happening.  A lot parents don't know to ask for one and get IHP's.

  • 2 weeks later...
rehh05 Apprentice

I am a teacher in a public school preschool program and I have celiac. 

Yes, you can ask for a 504 plan. But make sure that you talk to everyone who has anything to do with  your daughter. The preschool will be vigilant but will not eliminate wheat products from the school. 

You will need to politely and pleasantly advocate for her and educate the staff. Finding or creating handout with information on them would be very helpful. Make sure they understand that this is more severe than an allergy in many ways. 

Sometimes people think they understand this disease but they don't understand about cross contamination or how tiny bits can still cause problems. 

You are going to need to make sure they understand how important it is for her to wash her hands constantly. 

And they need to make sure any substitute teachers are informed too. 

If it is a half day it is easier as there is just snack and other kids hands to contend with, lunch is harder. But it is a rewarding experience. Help the staff question every substance that might accidentally get in her mouth... Paint, playdoh, glue, everything... And both home and school emphasize keeping hands out of mouth and washing things off of hands. 

I have had kids with extreme allergies in class and celiac and we all worked together without a 504 and things were fine. But if you can get a 504 do it. It is something you can refine in preschool and have ready we she goes to kindergarten and may really need it. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.