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What could be causing this?


Finallyglutenfree

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Finallyglutenfree Newbie

Hi everyone, just wondering if anyone has experienced this: 

i have gotten off everything with gluten, rice, dairy and even sugar. (Raw food diet plus a little plain meat) I was doing great for about a month, and now all of my symptoms are starting to creep back: depression, foggy mind, anxiety,mood swings, racing thoughts, etc. no gastrointestinal probs but I never had much of that to begin with. It's really discouraging because I thought I had a good handle on it.  Any ideas or suggestions? I eat a lot of seeds and nuts, vegetables, fruits and a bit of meat. 


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cyclinglady Grand Master

You are six months into then diet, but had a month of feeling good, right?  Perhaps you are consuming a hidden source of gluten.  Maybe go back to you doctor for a celiac blood panel to check for compliance?  

I was glutened in July.  I can not tell you what glutened me.  It was probably one product or one prescription medication that my gluten-free husband did not consume, but I will never know because I am not going to test it out!  My symptoms were different that when I was diagnosed, so I went in for the blood panel.  Sure enough my antibodies were high!  Took me two months to feel better and another month to get dairy back.  I thought that I was very careful (have been at this gluten-free with my hubby for 14 years and over two years for me.)

Gluten happens. ?. At least rule it out.  

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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