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Hello I'd like some advice on my symptoms

Josh sash

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Josh sash Newbie
Josh sash
Posted

Im new to this. I've had an ongoing problem with my stomach. I used to be a very activate person boxing and bodybuildin, then all of a sudden stomach pains. My symptoms of stomach pains. Tiredness, weight loss, off balance, bad co-ordination,muscle loss and nerves pulsating and general nueropathy. But yesterday I went to hospital to have a colonoscopy. It all come back as clear now there want a stool sample and blood test to see what's going on with my intestines eg Crohns or celiac or whatever. Has anyone had similar things like this before being diagnosed me?.. If I have celiac can I make a recovery? And would the symptoms I've had for over 18 months,which have got worse be from possible celiac or dysfunctions?... Please advice.

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kmarsh1977 Newbie
kmarsh1977
Posted
5 hours ago, Josh sash said:

Im new to this. I've had an ongoing problem with my stomach. I used to be a very activate person boxing and bodybuildin, then all of a sudden stomach pains. My symptoms of stomach pains. Tiredness, weight loss, off balance, bad co-ordination,muscle loss and nerves pulsating and general nueropathy. But yesterday I went to hospital to have a colonoscopy. It all come back as clear now there want a stool sample and blood test to see what's going on with my intestines eg Crohns or celiac or whatever. Has anyone had similar things like this before being diagnosed me?.. If I have celiac can I make a recovery? And would the symptoms I've had for over 18 months,which have got worse be from possible celiac or dysfunctions?... Please advice.

Yes, yes, and yes.  All of this will be easier for you once you have some sort of diagnosis - whatever that is.  Crohns and celiac can be treated, as can other conditions.  And hopefully your treatment will allow you to return to your activities soon.  Good luck!

Ender Apprentice
Ender
Posted

I'm pretty much going through this now. My limbs and left quad have a tendency to go completely dead hours after I eat gluten (and other carbs and sugar) so I have cut them all from my diet. My muscles are sore and weak, all my joints hurt and get stiff in the morning , I have headaches, I'm tired but have insomnia, and I've gone from 150 to 118 lbs in the last seven months. It is extremely difficult to go to work and function, mostly because sitting at a desk for eight hours is hard. I tested negative for Chrons and my celiac panel is inconclusive (I'd only eaten gluten again for 2 weeks before I got tested). My B12 and D3 are normal now, so it's not that. I've begun to doubt my problems are related to celiac or gluten tolerance.

Good luck with your neurologist. Mine told me that celiac does not cause numbness/tingling in limbs. Only low B12 due to celiac damage causes it. However, I've read in neurology journals about something called gluten ataxia. Look it up. Don't expect your doctors to know anything about it though.

Mine have given me very little help as to the actual cause of whatever is going on with me. I've done a mountain of research into what could be going on with me because I have "good days" when my symptoms aren't as bad. They seem related to my food. If I ate nothing but cabbage and meat today, I'd feel much better tomorrow. So...something is going on, I just don't know what (and it's impossible to just eat cabbage and meat unless you're a fan of D). Right now, I'm looking at carbohydrate intolerance. I've cut out all grains, fruit, starchy veggies, and most dairy to see if that helps. Look up the "two week test" if you're curious about that. I just started yesterday. I feel awful today on it, and I'm about to cut out all dairy to see if that changes things since I know milk can trigger my joint pain.

In any case, other things you might want to look into are thyroid and MS. Other causes might be oxalate excess, salicylate intolerance, or a magnesium deficiency. If this carbohydrate intolerance diet doesn't fix my problems, I'll probably start supplementing with magnesium/calcium and see if that helps.

squirmingitch Veteran
squirmingitch
Posted
19 hours ago, Josh sash said:

Im new to this. I've had an ongoing problem with my stomach. I used to be a very activate person boxing and bodybuildin, then all of a sudden stomach pains. My symptoms of stomach pains. Tiredness, weight loss, off balance, bad co-ordination,muscle loss and nerves pulsating and general nueropathy. But yesterday I went to hospital to have a colonoscopy. It all come back as clear now there want a stool sample and blood test to see what's going on with my intestines eg Crohns or celiac or whatever. Has anyone had similar things like this before being diagnosed me?.. If I have celiac can I make a recovery? And would the symptoms I've had for over 18 months,which have got worse be from possible celiac or dysfunctions?... Please advice.

A colonoscopy can not dx celiac disease nor will a stool sample. You need a full celiac blood panel and an ENDOSCOPY taking 4-6 biopsies AND you must have been eating a normal gluten diet throughout as well as for a long time beforehand.

canadianjem Rookie
canadianjem
Posted

I am going to chime in on a different tangent here.

You said that you are/have been body building.  Are you taking any supplements or enhancements ?  Sometimes these types of things can cause stomach issues which in turn can cause other issues.

Just a thought

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