Reaction time to gluten free bread

[Cairo Annie]

My friend has all the symptoms of Celiac but tests came back negative.  He is seeing a specialist next month but until then we are trying to keep his diet clean but interesting.  When he eats clean he is fine. However,  I made him some gluten free bread and he didn't react at all.  And yesterday  (24 hours after he ate the bread) we went to a gluten free cafe and he had a pie.  Almost immediately he reacted with severe problems in his upper digestive tract and this morning he has got severe problems in his lower intestine.  

We know that the pie cause problems but my question is could the bread also be a problem - would it take that long (24 hours) for a reaction to hit his lower intestine?  We will keep him on clean eating and then try again with the gluten free bread but Id prefer not to poison him again.  Any help would be greatly appreciated.

[kareng]

do you know the ingredients of the pie crust and filling?  There could be a lot of ingredients.  he could happen to have a problem with one or more of them, not related to Celiac.

[squirmingitch]

If your friend is going to be tested then he MUST BE EATING A GLUTEN DIET or the tests will be skewed. See:

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[RebekahLynn]

If he's not eating gluten, the tests can come back negative even if he has celiac. You have to be eating gluten daily to get accurate results (12 wks for blood test, 2 weeks for biopsy). Also, people who have trouble digesting FODMAPs will do better gluten free because wheat is high in FODMAPs. Some fruits are also high in FODMAPs, so that could explain him getting sick after pie if it's not gluten. Basically, it's better to eat a standard diet before seeing a specialist and getting tests done or you could confuse results. Best of luck to your friend! 

[Cinner]

I've been celiac for 2 years, and just had a bad reaction to GF granola. Did some reading and determined that I may also need to avoid grains. That might be the problem for him. It's worth looking into. Check out the RealFoodForager.com website for info - especially the Westin A. Price (WAP) diet info (eye opening) and paleo diet.